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National Scleroderma Foundation Broadens Reach with New Name

The Scleroderma Foundation evolves into the National Scleroderma Foundation to help those affected by scleroderma find their best path and live...

January 10, 2022Steve Sookikian

Scleroderma Community Deeply Saddened by Loss of Bob Saget

The sudden loss of Bob Saget on Sunday, January 9, 2022, is a terrible loss for his family and the entire...

January 10, 2022Steve Sookikian

2021 Kids Get Scleroderma, Too!

A Virtual Conference for Parents & Guardians — The 2021 Kids Get Scleroderma, Too! conference (KGS2) took place as a one-day,...

December 21, 2021Development Elevation

Save the Date for the 2022 National Scleroderma Conference

July 15, 16, 17 in Bellevue, Washington — The National Scleroderma Foundation announced a return to an in-person event for its...

December 20, 2021Development Elevation

Establishing the Debra Lurvey Memorial Research Grant

“You could be the person who finds the cure!” — Debra Lurvey did not let her diagnosis of systemic scleroderma change...

October 15, 2021Development Elevation

National Scleroderma Foundation Receives Record Number of Grant Applications

2021 marks 40% increase in submissions — The National Scleroderma Foundation announces an increase of its peer-reviewed scientific research funding to...

October 15, 2021Development Elevation

National Scleroderma Foundation More than Doubles Research Funding

Annual research funding increases to $2.723 million — On the occasion of World Scleroderma Day, June 29, the National Scleroderma Foundation...

June 29, 2021Development Elevation