Get Involved > Why it Matters > Voices of Scleroderma
“Scleroderma took my ability to walk, so I learned how to fly. If I can fly, I can do anything.” —Michael...
“He had such resilience and strength. Dad couldn’t hold the hammer, so he created a makeshift grip for his hammer in...
“I’m still adjusting. Sometimes, I’m good for a week but then something else starts going on that’s weird. Sometimes, it hits...
“I didn’t like talking about the disease to anyone, because the name was hard to say, people didn’t know what it...
“The hard thing about scleroderma is that every person has different symptoms, a different progression, a different experience–but everyone can turn...
“My husband and I try to teach Grace that she needs to learn how talk about her own symptoms and treatments...
“The National Scleroderma Foundation has been nothing but wonderful to me. They have opened their arms, provided me with information, support,...
“The National Scleroderma Foundation is a great resource whether it’s online or actually providing people to connect with. The staff is...
“I feel fortunate to have received support from the National Scleroderma Foundation. It is a wonderful, kind, encouraging, and collaborative community....
