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Groups and Discussions

Support Groups

Volunteer-led support groups enable individuals with scleroderma to meet and exchange information with others who face similar challenges. Support group leaders are trained with a comprehensive program developed with our partners at SPIN (Scleroderma Patient-centered Network). Because of the COVID-19 pandemic, our support groups are meeting virtually. In addition to our local support groups, there are Foundation-affiliated support groups around the country. To access more information about any of our support groups, visit Find a Support Group and search based on your zip code and topics.

Would you like to become a Support Group Leader?

We are always looking to expand our support groups into new areas. Please contact our office if you are interested in becoming a Support Group Leader.

Need to talk to someone?

Meet our new Patient & Caregiver Outreach Chair, Kathy Griffin! Kathy will be reaching out to individuals with scleroderma and caregivers to learn how the National Scleroderma Foundation Delaware Valley Chapter can best assist in providing information about our programs and services. Meet Kathy!

“I am excited to begin my new role as the Patient and Caregiver Outreach Chair at the National Scleroderma Foundation Delaware Valley Chapter. I was diagnosed with scleroderma in 1995. Joining the Chapter Advisory Committee last year has strengthened my commitment to advocacy. As the Support Group Leader for Camden and Burlington counties, I enjoy helping individuals access the resources they need to improve their lives. I am looking forward to assisting individuals with scleroderma and caregivers in the Delaware Valley.”

We want to hear from you. How can we help?

Those who have scleroderma and their caregivers join our community at various stages in their scleroderma journey. Let us know what we can do to provide you with meaningful support.

Which topics would you like to learn more about?
– Do you attend Support Group meetings? If not, how can we change that?
– Would you prefer Zoom meetings or conference calls?
– Do you want to hear more about the resources the chapter has available?
– Are you interested in webinars?
– Do you have any ideas you would like to see implemented? Tell Kathy!

Please send an email to let her know your specific needs, ideas, or just to chat. Kathy is a wonderful listener. Call Kathy at (c) 609-519-1770 or email kgriffin@scleroderma.org.