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Advocacy and Awareness

Advocating for changes in public policy contributes to the relentless force in finding a cure and improving the lives of people affected by scleroderma. Each individual in the scleroderma community can make an incredible difference by reaching out to their elected officials to encourage them to support legislation for people affected by scleroderma.

On this page, our chapter will shout out our local advocates and highlight the incredible work for scleroderma advocacy. Look here for our advocacy updates and advocate highlights!.


Scleroderma Awareness Month takes place in June each year and is highlighted by World Scleroderma Day on June 29. Check this page to learn about ways that you can engage in the effort to increase awareness and understanding of scleroderma and how the Foundation helps individuals and families affected by the disease.