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Advocacy and Awareness


Advocating for changes in public policy contributes to being a relentless force in finding a cure and improving the lives of people affected by scleroderma. Each individual in the scleroderma community can make an incredible difference by reaching out to their elected officials to encourage them to support policies and legislation on behalf of people affected by scleroderma.

On this page, our chapter will shout out our local advocates and highlight the incredible work for scleroderma advocacy. Look here for our advocacy updates and advocate highlights!


Scleroderma Awareness Month takes place in June each year and is highlighted by World Scleroderma Day on June 29.  Check this page to learn about ways that you can engage in the effort to increase awareness and understanding of scleroderma and the ways in which the Foundation helps individuals and families affected by the disease.

Join the Pacific Northwest Chapter for a Night at the Seattle Mariners

T-Mobile Park, June 11, 2022; 7:10 p.m. Pacific
We look forward to you joining us on June 11, 2022 at 7:10 p.m. when the Seattle Mariners take on the Boston Red Sox at T-Mobile Park.
Learn more at After completing COVID-19 and media waivers, you will receive an email with a link to purchase tickets to the game. The first 300 people receive a T-shirt. Tickets are $37 per person.