July 15, 16, 17 in Bellevue, Washington —
The National Scleroderma Foundation announced a return to an in-person event for its 2022 National Scleroderma Conference, its signature education program. The location, Bellevue, Washington, was scheduled as the 2020 location; however, the COVID-19 pandemic caused the organization to convert to a virtual platform to protect the health of individuals affected by scleroderma. The name of the conference venue will be released on registration for the conference. Registration details and scholarship applications will be available by February of 2022 at www.scleroderma.org/conference.
At the same time that adults affected by scleroderma are meeting, a parallel program for kids and teens, called Kids Get Scleroderma, Too! (KGS2), will take place in the same venue. KGS2 is for youth under 18 years of age who have scleroderma, their siblings, parents, and caregivers. Leading pediatric rheumatologists provide crucial information to parents and to youth to help them understand and manage the disease. Registration information will also be available on www.scleroderma.org in February.
About the National Scleroderma Conference
The annual National Scleroderma Conference is a special experience, particularly for first-time attendees, but also for those who return every year. The Foundation staff and Board of Directors values each individual highly and looks forward to sharing time together.
The conference offers educational and networking opportunities for people living with scleroderma, caregivers, family members, and friends. It is also an excellent resource for physicians and other healthcare professionals, who seek more information about the disease.
Workshops, panel discussions, and other educational sessions are led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Scleroderma Conference is a great way to learn about the disease and to connect with others who are coping with scleroderma.
Video recordings of presentations by scleroderma experts at previous National Scleroderma Conferences are posted at www.YouTube.com/sclerodermaUS.
Scleroderma is a rare autoimmune disease that affects connective tissue and the vascular system producing excessive collagen that causes fibrosis in the skin (localized) or in internal organs (systemic sclerosis). More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers, causing pain, disability, and death. Thanks to the passion and dedication of volunteer leaders, scientists and supporters, great strides have been made. Yet despite these advancements, the challenges in scleroderma today are greater than ever, requiring committed resources to achieve ambitious goals and outcomes.
ABOUT THE NATIONAL SCLERODERMA FOUNDATION
The National Scleroderma Foundation is a 501(c)(3) charitable organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma. Supported by a network of thousands of individuals across the United States, the Foundation aims to help people living with scleroderma find their best path.