Scleroderma Support Groups

COVID statement

Your health and safety and that of every person affected by scleroderma is of paramount importance to the National Scleroderma Foundation. The Foundation takes very seriously the threat COVID-19 presents to individuals living with scleroderma, who are immunocompromised. Although vaccines are currently available in the United States and there are fewer capacity restrictions on gatherings, there remains an inherent risk. As a community, we want to ensure that we are keeping each other safe while actively assessing our policies and practices.

Learn more about the Foundation’s Medical & Scientific Advisory Board’s recommendations regarding COVID-19.

CONNECT WITH OTHERS ON A SIMILAR JOURNEY

As support is one of the main pillars of the National Scleroderma Foundation’s mission, we are happy to share that there are more than 100 Foundation-affiliated scleroderma support groups around the country. Our support group leaders are trained volunteers who are committed to creating safe, welcoming and inclusive environments where all can share about their journey with scleroderma.

Instructions

Use this directory to search for a scleroderma support group near you. You may also contact the National Office to locate a group or see a full list of groups here.

Note: Many of our groups switched to online or telephone meetings to maintain contact during the pandemic. Simply contact the group leader to gain access to the meeting location or to receive the virtual meeting link.

Search
States
Topics
Zip Code
Miles
Virtual & In-person
85 results found

STATE NAME
FL
City/Area Name
Florida Virtual Support Group
Group Leader Name
Jessica Massengale, Desi James, and Meryl Parr
Meeting Frequency
Contact Group Leader

STATE NAME
SC
City/Area Name
Columbia Area
Group Leader Name
Paula Birch Billingsley
Meeting Frequency
Contact Group Leader for Schedule

STATE NAME
NC
City/Area Name
North Carolina Triad Scleroderma Support Group
Group Leader Name
Donna Dinkin
Meeting Frequency
Contact Group Leader

topic
Caregivers
City/Area Name
Virtual
Group Leader Name
Debbie Haussler
Meeting Frequency
4th Thursday Monthly, 7 p.m. ET

STATE NAME
NE
City/Area Name
Statewide
Group Leader Name
Renee Hyde
Meeting Frequency

topic
Teens and Parents
STATE NAME
NM
City/Area Name
Albuquerque
Group Leader Name
Maria Tafoya, Jackie Martinez, and Debra Droux
Meeting Frequency

STATE NAME
SC
City/Area Name
Piedmont
Group Leader Name
LaKesha Williams
Meeting Frequency
Contact Group Leader for Schedule

NM New Mexico Albuquerque

topic
Teens and Parents
STATE NAME
New Mexico
City/Area Name
Albuquerque
Group Leader Name
Maria Tafoya, Jackie Martinez, Debra Droux
Meeting Frequency
4th Wednesday, Monthly, 6 PM Mountain

topic
Young Adults
STATE NAME
NJ
Group Leader Name
Amanda Lippincott, Young Adults, 18 to 30's
Meeting Frequency
1st Thursday, monthly, 7:30 - 8:30 PM ET