Scleroderma Support Groups

COVID statement

To protect the health of all individuals who are affected by scleroderma, it is the policy of the National Scleroderma Foundation to not conduct in-person meetings of support groups or other Foundation activities. Learn more about the Foundation’s Medical & Scientific Advisory Board’s recommendations regarding COVID-19.

instruction

Use this directory to search for a support group near you. You may also contact the National Office to locate a group. There are more than 100 National Scleroderma Foundation-affiliated support groups around the country. Contact the group leader to gain access to the meeting location or to receive the virtual meeting link. Many groups have switched to online or telephone meetings to maintain contact during the pandemic. Support group leaders are trained volunteers.

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Virtual & In-person
102 results found

NM New Mexico Albuquerque

topic
Teens and Parents
STATE NAME
New Mexico
City/Area Name
Albuquerque
Group Leader Name
Maria Tafoya, Jackie Martinez, Debra Droux
Meeting Frequency
4th Wednesday, Monthly, 6 PM Mountain

topic
Young Adults
STATE NAME
NJ
Group Leader Name
Amanda Lippincott, Young Adults, 18 to 30's
Meeting Frequency
1st Thursday, monthly, 7:30 - 8:30 PM ET

topic
Young Adults
STATE NAME
NY
Group Leader Name
Amy Gietzen, Scleroderma Young Adults Needing Connection
Meeting Frequency
Contact Group Leader for Schedule

topic
Parents of Children with Scleroderma
STATE NAME
MI
Group Leader Name
Pamela Pour
Meeting Frequency
1st Wednesday, Even Months, 7:30 - 9 PM

topic
BIPOC
STATE NAME
NY
Group Leader Name
Demi Montgomery
Meeting Frequency
Contact Group Leader for Schedule

topic
Phone Support
STATE NAME
WV
City/Area Name
Weirton
Group Leader Name
Sandra Fennych, Telephone Support
Meeting Frequency
Contact Group Leader for Schedule

STATE NAME
WV
City/Area Name
Huntington
Group Leader Name
Karen Baker
Meeting Frequency
Contact Group Leader for Schedule

STATE NAME
WA
City/Area Name
Seattle
Group Leader Name
Kris Garthe
Meeting Frequency
3rd Thursday, monthly, 2 PM PT

topic
Caregivers
STATE NAME
WA
City/Area Name
Seattle
Group Leader Name
Bunny Garthe, Caregivers
Meeting Frequency
Contact Group Leader for Schedule