Scleroderma Support Groups

COVID statement

To protect the health of all individuals who are affected by scleroderma, it is the policy of the National Scleroderma Foundation to not conduct in-person meetings of support groups or other Foundation activities. Learn more about the Foundation’s Medical & Scientific Advisory Board’s recommendations regarding COVID-19.

instruction

Use this directory to search for a support group near you. You may also contact the National Office to locate a group. There are more than 100 National Scleroderma Foundation-affiliated support groups around the country. Contact the group leader to gain access to the meeting location or to receive the virtual meeting link. Many groups have switched to online or telephone meetings to maintain contact during the pandemic. Support group leaders are trained volunteers.

Search
States
Topics
Zip Code
Miles
Virtual & In-person
89 results found

STATE NAME
FL
City/Area Name
Florida Virtual Support Group
Group Leader Name
Jessica Massengale, Desi James, and Meryl Parr
Meeting Frequency
Contact Group Leader

STATE NAME
SC
City/Area Name
Columbia Area
Group Leader Name
Paula Birch Billingsley
Meeting Frequency
Contact Group Leader for Schedule

STATE NAME
NC
City/Area Name
North Carolina Triad Scleroderma Support Group
Group Leader Name
Donna Dinkin
Meeting Frequency
Contact Group Leader

topic
Caregivers
City/Area Name
Virtual
Group Leader Name
Debbie Haussler
Meeting Frequency
4th Thursday Monthly, 7 p.m. ET

STATE NAME
NE
City/Area Name
Statewide
Group Leader Name
Renee Hyde
Meeting Frequency

topic
Teens and Parents
STATE NAME
NM
City/Area Name
Albuquerque
Group Leader Name
Maria Tafoya, Jackie Martinez, and Debra Droux
Meeting Frequency

STATE NAME
SC
City/Area Name
Piedmont
Group Leader Name
LaKesha Williams
Meeting Frequency
Contact Group Leader for Schedule

NM New Mexico Albuquerque

topic
Teens and Parents
STATE NAME
New Mexico
City/Area Name
Albuquerque
Group Leader Name
Maria Tafoya, Jackie Martinez, Debra Droux
Meeting Frequency
4th Wednesday, Monthly, 6 PM Mountain

topic
Young Adults
STATE NAME
NJ
Group Leader Name
Amanda Lippincott, Young Adults, 18 to 30's
Meeting Frequency
1st Thursday, monthly, 7:30 - 8:30 PM ET