Mission, Vision & Values

About Us

The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.

Founded as a 501(c)(3) charitable organization in 1998 and supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by funding research to discover the cause, to understand the mechanism, and together, to overcome this disease forever.

One of the most challenging things about scleroderma is that it shows up differently in each person. It’s more complicated to manage since there is not one clear path. At the National Scleroderma Foundation, we know that no two journeys are the same. We help people find the resources that are right for them so they can live better with scleroderma.


Thank you for joining us on our journey to be a relentless force in finding a cure.