Patient Advisory Board
The charge of the Patient Advisory Board is to support the leadership of the National Scleroderma Foundation by advising the Board of Directors on matters related to patient support, education, and research. The Patient Advisory Board serves as a link between the Foundation and the patient community and takes a leading role in disseminating patient information and education, developing timely educational programming, and establishing research priorities. In addition, the Patient Advisory Board is charged with mentoring new and potential leaders and assisting with the development of Foundation programs and services designed to achieve the mission priorities.
Dr. Virginia Steen, ex officio