The National Scleroderma Foundation is excited to launch a new tool to make contacting your legislator even easier. See the action alert background information below about our call for legislators to continue to include “scleroderma” in the list of eligible conditions for study in the Peer-Reviewed Medical Research Program.
Then, fill in your address and zip code in the form at the bottom of the page. This will identify your Senators and Congressional Representatives and provide a template letter to help you begin your message. Note that a place has been left for you to share the specifics of your journey with scleroderma or how you or someone you care about is affected by scleroderma.
Background
Every year, the scleroderma community celebrates our annual awareness month in June. The community uses this as an opportunity to increase education and awareness of scleroderma across the country. Education is also a key component of our advocacy efforts as we aim to ensure that lawmakers understand what scleroderma is and the complex challenges people in the community face living with this condition. In this regard, we hope you will reach out to your Members of Congress to let them know June is scleroderma awareness month and educate them about our community and our legislative priorities.
Throughout the month of June, the National Scleroderma Foundation will be celebrating the Beacons of Hope who empower and inspire the scleroderma community. You can provide support for Scleroderma Awareness Month by sharing a post using the social media toolkit the Foundation put together. Visit the Scleroderma Awareness Month page to learn more about the Foundation’s activities this month, which will conclude on June 29 by celebrating World Scleroderma Day.
Take Action
Complete the letter below with your scleroderma story and send your completed letter to your Member of Congress’s health staffer.
Add your address and zip code below to help identify your local legislators. After entering your address, a templated letter will appear for you.
Thank you for your ongoing support and advocacy on behalf of the scleroderma community. If you have questions or want to learn more about getting involved, please visit https://scleroderma.org/advocacy or email us at advocacy@scleroderma.org. Please allow up to 72 hours for a response.
