Board of Directors

Board of Directors

The Board is the governing body of the Foundation. The Board supports the work of the Foundation and provides leadership and strategic governance to advance the mission.

Our Board of Directors

Ex Officio

Jane Ladas, Chair, New England Chapter

Nancy Waltermire, Chair, Mid-Atlantic Chapter

Peggy Collins, Chair, Chapter Leadership Council

Evamarie Cole, Co-Chair, Patient Advisory Board

Karen Gottesman, Co-Chair, Patient Advisory Board

Katherine Torok, MD, Chair, Medical and Scientific Advisory Board

Mary J. Wheatley, IOM, CAE, Chief Executive Officer

Patient Advisory Board

The charge of the Patient Advisory Board is to support the leadership of the National Scleroderma Foundation by advising the Board of Directors on matters related to patient support, education, and research. The Patient Advisory Board serves as a link between the Foundation and the patient community and takes a leading role in disseminating patient information and education, developing timely educational programming, and establishing research priorities. In addition, the Patient Advisory Board is charged with mentoring new and potential leaders and assisting with the development of Foundation programs and services designed to achieve the mission priorities.

Patient Advisory Board:

Evamarie Cole, Co-Chair
Karen Gottesman, Co-Chair
Peggy Collins
Monica Ramirez
Nikhil Bhat
Sade Taylor
Carla King
Ron Sasso
Thomas Fry
Amanda Lippincott
Ann Mogilevsky
Erion Moore

Dr. Virginia Steen, ex officio

Chapter Leadership Council

The Chapter Leadership Council consists of prominent individuals from the scleroderma community who partner for the overall success of the National Scleroderma Foundation. The Council is made up of the Chairs of each chapter’s Chapter Advisory Committee. One representative from the Chapter Leadership Council sits on the National Board of Directors. In addition to creating a nationwide network of chapter leadership, this allows for greater linkage and communication between the National Board of Directors and Chapters. Learn more

The Chapter Leadership Council was approved by the Board of Directors in December 2021. They began in July 2022, and member terms run on the fiscal year as new Chapter Chairs are appointed and reappointed annually.

Please contact Ashley Pruett, MEd, Staff Liaison for more information