Share Your Stories of Hope
June is Scleroderma Awareness Month, and each year, we are inspired by the power and strength of our community. We all draw power from the stories of strength shared by members of our community, we find optimism in the latest research that promises better tomorrows, and we raise awareness by lighting communities across the country teal. In all of it, we feel hope.
That’s why this year, we are embracing and celebrating our Beacons of Hope. This June, we celebrated all of those who bring hope to our community. In celebrating the strength and hope within our community, we will let the world know more about scleroderma and the support our community needs.
Awareness Month culmunates on World Scleroderma Day, June 29. World Scleroderma Day highlights the need to increase awareness of scleroderma and to advocate for those affected by this life-threatening disease. June 29 was selected in 2009 by FESCA (Federation of European Scleroderma Associations) as World Scleroderma Day to commemorate Paul Klee, a gifted abstract artist who died of systemic sclerosis on June 29, 1940.
2026 #TealTalk Series
To celebrate Scleroderma Awareness Month, we are bringing our community together for our #TealTalk series of live conversations with special guests. You won’t want to miss this! Be sure to use the links below to register in advance or watch the recording after the event has taken place.
- June 8, 2:00 p.m. ET – #TealTalk Book Club – Watch Recording
- June 18, 4:00 p.m. ET – #TealTalk: Pediatric Scleroderma: What’s New in Treatment and Research – Watch Recording
- June 22, 2:00 p.m. ET – #TealTalk: Shining a Light on the Future – Watch Recording
- June 29, 2:00 p.m. ET – #TealTalk: World Scleroderma Day Get Together (Recording Not Available)
You can watch our previous #TealTalk events by visiting the National Scleroderma Foundation’s YouTube Channel.
2026 Light Ups & Proclamations
Proclamations and Light Ups
Proclamations:
- A proclamation is an official designation of an event. Proclamations are a great way to educate the public about a specific issue and bring attention to a cause.
- It is an effective tool for gaining public recognition of your event because it carries the full support of a key government official in your state or community.
Light Ups:
- During scleroderma awareness month in June, we will be lighting up across the USA.
- Why? To raise awareness
- Hashtag: #tealtalk
To share photos from proclamations and light-ups you have secured, please complete this form: Proclamations and Light-Ups
