Scleroderma Voice is the home for feature stories about people living with scleroderma, the latest in scleroderma research, and what is happening around the National Scleroderma Foundation.
In a recent interview, Kate Bogner shared her story with striking honesty and strength, offering a perspective shaped not just by...
Living with a rare disease like Diffuse Scleroderma can feel overwhelming, isolating, and extremely frightening- especially in the early days of...
Peter Morawski, PhD, is a 2023 National Scleroderma Foundation research grant recipient, and is on a quest to find better treatments...
In the scleroderma community, support groups are more than just a gathering – they are lifelines. They offer connection, understanding, and shared strength....
En la comunidad de esclerodermia, los grupos de apoyo son más que un simple encuentro: son un salvavidas. Ofrecen conexión, comprensión...
On New Year’s Day, Wisconsin volunteers Krista Peterson and Denny Novachek took on the Polar Plunge challenge in Jacksonport, WI –...
As we step into a new year, we are excited that 2026 will be a celebration of our “Beacons of Hope.”...
Our Upper Great Lakes Chapter wrapped up a very successful November 30-Day Gratitude Challenge, and we couldn’t be more grateful for...
Health behavioral scientist offers evidence-based cognitive strategies for living well with scleroderma. Many people with scleroderma use the term “brain fog”...
