Patient & Caregiver Information
The National Scleroderma Foundation provides a wealth of information about the disease, about the resources you need to manage the illness to find your best path, about the research undertaken to discover the cause, understand the mechanism, and overcome scleroderma forever and more.
KGS2 creates a safe and fun atmosphere for youth living with scleroderma to be themselves while they learn about their disease and interact with their peers.
Volunteer-led support groups enable individuals with scleroderma to meet and exchange information with each other. There are 155 National Scleroderma Foundation-affiliated support groups around the country.
Search these pages to find fact sheets about scleroderma and to make connections with other organizations (public and private) who align with the National Scleroderma Foundation mission.
Our Fact Sheets cover a wide range of topics on symptom management and more.