Kids Get Scleroderma, Too! Conference

2023 Kids Get Scleroderma, Too!

Join us at the Signia by Hilton Orlando Bonnet Creek, July 14, 15 and 16, 2023 for the Kids Get Scleroderma, Too! Conference.  This will be a hybrid conference, and virtual attendance will also be available for those unable to join us in person.

Reasons Why You Should Attend the National Patient Education Conference

  • Understand how to cope with the emotional challenges of living with scleroderma.
  • Build a support network and connect with other families navigating scleroderma.
  • Learn about current therapies from the top pediatric rheumatologists.
  • Be empowered to become an advocate for yourself or your child living with scleroderma.
  • Have fun, meet people your own age living with scleroderma and make lasting memories.

About the National Scleroderma Conference

Join us at our annual Kids Get Scleroderma, Too! patient education conference in Orlando, Florida!  The conference offers an information-rich opportunity for youth living with scleroderma, their caregivers and family members. KGS2! Is geared toward youth affected by scleroderma ages 5-17 and their families.

Workshops, panel discussions, interactive sessions and other educational sessions are led by leading pediatric scleroderma researchers and health care professionals. Whether your family is in the process of navigating a diagnosis or has had scleroderma for many years, the KGS2! conference is a great way to learn about the disease and connect with other families.

Travel Information

Hotel information:

Signia by Hilton Orlando Bonnet Creek
14100 Bonnet Creek Resort Lane
Orlando, FL  32821

We have secured a room rate of $199 per night for the National Scleroderma Foundation room block. This rate will be available three days prior and three days post conference. The room rate is subject to hotel availability, so be sure to secure your room as soon as possible.

Please visit the following link to make your reservations now:

PLEASE NOTE there are companies that may contact you who claim to be able to offer lower room prices than even our room block. These companies are not affiliated with the National Scleroderma Foundation or with the Signia by Hilton Orlando Bonnet Creek, and they might not be legitimate. Entering into financial agreements with such companies may impact you negatively. *Please note that our room rate is valid until June 25, 2023.

If you have any special accommodation requests, please contact our office at (800) 722-4673, or email

Orlando International Airport (MCO)
One Jeff Fuqua Boulevard,
Orlando, Florida 32827


Hotel direction: 20 miles from MCO airport

This hotel does not provide shuttle service.

Alternate transportation: Mears transportation (pricing varies)

Estimated taxi fare: 70 USD (one way)

Transportation information


Driving directions: From Orlando International Airport (MCO)

  • Head east on Airport Blvd (1.3 miles)
  • Continue onto S Semoran Blvd (0.3 miles)
  • Take the ramp onto FL-528 W Partial Toll Road (10.9 miles)
  • Take the exit onto I-4 W toward Tampa (4.7 miles)
  • Take exit 67 toward Epcot/Disney Springs® (1.1 miles)
  • Merge onto Epcot Center Rd (0.7 miles)
  • Take the first exit to Disney Springs®/Typhoon Lagoon (0.30 miles)
  • At traffic light make a left onto Buena Vista Dr (0.2 miles)
  • At the next light turn left onto Chelonia Pkwy (1.1 miles)
  • Turn right onto Bonnet Creek Resort Lane, Signia by Hilton Orlando Bonnet Creek is the first right.

Other Transportation
Car Rentals

Orlando International Airport Car Rental Services
AVIS Rental Car

Plaza Garage, 8050 International Dr. Hollywood, Orlando, FL 32819
Budget Car Rental Car

8978 International Dr. Orlando, FL 32819


Train transportation to and from Miami


The hotel offers overnight parking for $16 per day (plus taxes). This is a discounted rate for people attending the conference.

Medical Device Rentals- There are many options in Orlando for rentals. Here are some options:

Wheelchair/Scooter Rentals:

Orlando Medical Rentals

Florida Mobility Rentals

Oxygen Rental:

Orlando Medical Rentals

Direct O2

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