Kids Get Scleroderma, Too! Conference

The Program for Youth Living with Scleroderma


Date: October  22, 2022

The Kids Get Scleroderma, Too! Conference (KGS2) is a chance to connect and learn virtually.  To stay up to date on conference news, please submit your email here.


Kids Get Scleroderma, Too! Schedule at a glance

  • Welcome to the KGS2! Conference! Doors open
    • 1:00 p.m. Eastern
  • Overview of Localized Scleroderma
    • 1:15 p.m. Eastern
  • Overview of Systemic Scleroderma
    • 1:15 p.m. Eastern
  • Networking Opportunities/ Making Connections
    • 1:55 p.m. Eastern
  • COVID-19 for the Immunocompromised in 2022
    • 2:15 p.m. Eastern
  • Medications in Scleroderma Panel Discussion
    • 3:10 p.m. Eastern
  • Transition, Resources and what you need to know
    • 3:10 p.m. Eastern
  • Networking Opportunities and open Discussion
    • 4:00 p.m. Eastern
  • Navigating Mental Health Challenges as a Family with Scleroderma
    • 4:30 p.m. Eastern
  • Yoga and physical Health
    • 5:30 p.m. Eastern

Kids Get Scleroderma, Too! Paint Party

Date: October  23, 2022

The registration deadline for the Kid’s paint party is past. If your child would still like to attend the event, please email as soon as possible.

Youth who have scleroderma, ages 6 to 17, and their siblings, are invited to join a special virtual paint party!

Maximum limit of two paint kits per household.

FREE and open to international participants


KGS2 is for youth, ages 5 to 17, who have scleroderma and their immediate family members, including parents or guardians and siblings only.

KGS2 creates a safe and fun atmosphere that allows youth to be themselves while they learn about their disease and interact with their peers.

Educational programming is organized into age-appropriate groupings of younger children (5-12) and teens (13-17).

Parents and guardians attending the conference will have their own sessions designed specifically for the needs associated with raising a child with scleroderma.

Siblings also benefit by learning about what their sister or brother is experiencing.

KGS2 works closely with pediatric providers from across the United States to design a program where young attendees and their caregivers can learn about scleroderma in a fun environment that promotes making new connections.

We strive to create an engaging, fun experience.

Leading pediatric rheumatologists present essential information to help families navigate their scleroderma journey and find their best path forward.


Programming in the past has included the following topics:

Five to Twelve Year Olds

  • Yoga for the Special Child®
  • Scleroderma 101: L-E-A-R-N
  • Play, Fun, Move in just a Minute

Thirteen to Seventeen Year Olds

  • Advocacy for Youth with Scleroderma
  • Talking to Your Peers About Scleroderma
  • Transition Mindshift
  • Penny For Your Thoughts: Questions from the Jar Are Answered


  • Pediatric Scleroderma: What Is It? Where Do We Go From Here?
  • Dermatology & Skin Care in Scleroderma
  • Navigating Chronic Illness: A Parent’s Perspective
  • What’s Happening in Scleroderma Research
  • How to be an Effective School Advocate for a Child with Scleroderma
  • Teach Your Children to Be Masters of Their Universe Within by Setting an Example

To receive email updates when registration, scholarship, and programming information are available, please enter your email address at