The National Scleroderma Foundation makes an impact that is far-reaching, enduring, and transformative.
We have 140 Support Groups, 16 Chapters, and we operate in 26 states across the country.
Annual Stepping Out to Cure Scleroderma walks attract 10,000+ participants
767+ people attend our National Scleroderma Conference and Kids Get Scleroderma, Too! Conference combined
“The Foundation has supported me by linking me with other patients and helping me find the resources I need to manage my health.”
Our Resources Benefit Millions of People
We have 28 world-renowned scleroderma experts on our Medical & Scientific Advisory Board and a global community of 300+ scientists who participate in our Global Research Seminars.
In 2021, we received 37 scleroderma research grant applications and awarded nearly $2.4 million in funding.
To date, the Foundation has awarded more than $30 million in research grants throughout our history.
We empower more than 125 grassroots leaders to share their stories with US Senators and advocate for bipartisan legislative action.