Impact on People with Scleroderma

The National Scleroderma Foundation makes an impact that is far-reaching, enduring, and transformative.

Providing true coast-to-coast coverage, the Foundation is comprised of 13 chapters that provide support and education for people affected by scleroderma including 50 support groups.

Annual Stepping Out to Cure Scleroderma walks attract more than 3,000 participants

More than 600 people attend our National Scleroderma Conference and Kids Get Scleroderma, Too! Conference

“The Foundation has supported me by linking me with other patients and helping me find the resources I need to manage my health.”

–Erion Moore

Our Resources Benefit Millions of People

“Tons of info, and Inspire is awesome!”
Athena Roberts

We have more than 20 world-renowned scleroderma experts on our Medical & Scientific Advisory Board and a global community of more than 200 scientists who participate in our Global Research Seminars.

In 2024, we received 25 scleroderma research grant applications and awarded 7 grants totaling nearly $1.4 million in funding.

To date, the Foundation has awarded more than $34.8 million in research grants throughout our history.

“The National Scleroderma Foundation helped us find two of the doctors that we really like.
The Foundation has made what I’ve had to go through much easier.”
Ian

We empower more than 400 grassroots leaders to share their stories with US Senators and advocate for bipartisan legislative action.

“The Foundation has given me hope. It also gave me a vehicle to help my husband cope with scleroderma.”

–Ronni Shulman Mallozzi

“Over 25 years ago my first husband was diagnosed with progressive systemic scleroderma…While his struggle with scleroderma finally ended, I still think of families and the people who struggle with this disease on a daily basis. I am very happy to see organizations like the National Scleroderma Foundation raising awareness and supporting families.”