Impact on People with Scleroderma

The National Scleroderma Foundation makes an impact that is far-reaching, enduring, and transformative.

We have 140 Support Groups, 16 Chapters, and we operate in 26 states across the country.

Annual Stepping Out to Cure Scleroderma walks attract 10,000+ participants

767+ people attend our National Scleroderma Conference and Kids Get Scleroderma, Too! Conference combined

“The Foundation has supported me by linking me with other patients and helping me find the resources I need to manage my health.”

Erion Moore

Our Resources Benefit Millions of People

“Tons of info, and Inspire is awesome!”

Athena Roberts

We have 28 world-renowned scleroderma experts on our Medical & Scientific Advisory Board and a global community of 300+ scientists who participate in our Global Research Seminars.

In 2021, we received 37 scleroderma research grant applications and awarded nearly $2.4 million in funding.


To date, the Foundation has awarded more than $30 million in research grants throughout our history.

“The National Scleroderma Foundation helped us find two of the doctors that we really like.
The Foundation has made what I’ve had to go through much easier.”


We empower more than 125 grassroots leaders to share their stories with US Senators and advocate for bipartisan legislative action.

“The Foundation has given me hope. It also gave me a vehicle to help my husband cope with scleroderma.”

Ronni Shulman Mallozzi

“Over 25 years ago my first husband was diagnosed with progressive systemic scleroderma…While his struggle with scleroderma finally ended, I still think of families and the people who struggle with this disease on a daily basis. I am very happy to see organizations like the National Scleroderma Foundation raising awareness and supporting families.”

Marie Ellen Buck