Get the Facts
Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system producing excessive collagen that causes fibrosis in the skin (localized) or in internal organs (systemic sclerosis). The result can be disfigurement and disability, and for some it’s life-threatening. The cause is unknown and there is no cure.
A diagnosis of scleroderma doesn’t have to be overwhelming, even though the disease is complex. An experienced rheumatologist who specializes in scleroderma is key to a quick and proper diagnosis that leads to treatment that may help minimize symptoms and decrease the chance of irreversible damage.
Scleroderma isn’t easy to explain. It’s a complex disease. There are different types of scleroderma. This information is meant to serve as a reference tool when talking with your pediatric rheumatologist. It can help you ask specific questions and share pertinent information so that you and your physician make the best decisions possible.
The National Scleroderma Foundation can help you or your child find your best path forward with scleroderma. Use the resources on this website to guide on your path, one step at a time.
Our signature education event provides access to scleroderma experts and connects you with the heart of the scleroderma community