National Scleroderma Conference

Schedule

This is the preliminary schedule, and is subject to change.

Friday, July 15 (6 – 8:45 p.m.*), features welcome activities, breakout sessions, and the exhibit hall.  The highlight of the evening is a 6:30 p.m.* keynote presentation.

• 6 – 8:45 p.m.
  • Welcome Address
  • Keynote Opening, Dinesh Khanna MD, MS
  • Networking and Social Opportunities
  • Exhibit Hall

Saturday, July 16 (12 – 8:30 p.m.*), is a full day starting at noon and ending at 8:30 p.m.*  The schedule includes a wide range of sessions in addition to the research poster hall and the exhibitor hall.

• 12 – 1 p.m.
  • Poster Hall
• 1 – 2 p.m.
  • Grand Lecture: The Lung in Systemic Sclerosis, Elizabeth Volkmann MD, MS
  • Grand Lecture: Localized Scleroderma, Heidi Jacobe, MD
• 2 – 2:15 p.m.
  • Meet the Yoga for Scleroderma Team: How Yoga Has Helped Us, Yoga for Scleroderma
• 2:15 PM – 3:15 PM
  • Scleroderma 101, Michael York, MD
  • Staying Active With Scleroderma Panel, Rachel Lando, RYT 200, E-RYT 200
  • What You And Your Dentist Need To Know About Scleroderma, David Leader,
    DMD, MPH, Luis Del Castillo, DMD
• 3:15 PM – 4:15 PM
  • Exhibit Hall Unopposed Times (Exhibit Hall Open All Day)
•  4:15 PM – 5:15 PM
  • What Is Preventative Care and Why Is It So Important, Tracy Frech, MD, MS
  • Taking Care of Your Hands and Face: “The Importance of Stretches, Assistive
    Devices and Protection”, Janet Poole, PhD, OTR/L
  • Music Therapy / Singing For Health, Erin Raber, MA, MT-BC
• 5:15 PM – 5:30 PM Break
  • Staying Active With Scleroderma, Rachel Lando, RYT 200, E-RYT 200
• 5:30 PM – 6:30 PM
  • Mental Health And Mindfulness, Nancy Lazar, LCSW
  • GI Involvement in Scleroderma: A Look Into the Microbiome & Promising
    Research, Elizabeth Volkmann MD, MS
  • Patients Educating Future Healthcare Professionals: The Art of Advocacy,
    Steffens Scleroderma Foundation
  • Pulmonary Arterial Hypertension in Systemic Sclerosis, Richard Silver, MD
• 6:45 PM – 7:30 PM Open Discussion Breakout Rooms
  • Exercise Is Medicine
  • Men: The 20%
  • Yoga Is For Every Scleroderma Body
  • Newly Diagnosed
  • Caregivers Open Discussion
  • Young Adults Living With Scleroderma, Support Group Panel Discussion

Sunday, July 17 (12 – 5:15 p.m.*), is a shorter day, but no less full, starting at noon with a collection of educational sessions and access to the exhibitor hall.  The closing keynote speech is from 4:15 to 5:15 p.m.*

• 12:00 PM – 1:00 PM
  • Clinical Treatment Trials: Are They Right For You, Maureen Mayes, MD, MPH
  • Medications in Scleroderma, Jessica Farrell, Pharm D.
  • Predicting Progression, Laura Hummers, MD, SCM
  • The Caregiver Experience, Nancy Rhodes, APRN-BC
•  1:00 PM – 2:00 PM
  • The Heart In Ssc Q & A, Benjamin Freed, MD, FACC, FASE
  • Understanding Scleroderma Tests, Soumya Chatterjee, MD, MS
  • How to Get Involved in Advocacy for Scleroderma, Philip Goglas
  • Scleroderma in African Americans, Virginia Steen, MD
•  2:00 PM – 2:15 PM
  • Let’s Talk Yoga, Q & A, Yoga For Scleroderma Team
•  2:15 PM – 3:15 PM
  • Interstitial Lung Disease In Ssc, Kristin B. Highland, MD, MSCR
  • Navigating SSDI Benefits, National Social Security Disability Representatives
  • Skin Care In Scleroderma, Christina Lam, MD, Reina Gonzalez, MD
  • BIPOC Support Group Open Discussion
•  3:15 PM – 4:15 PM
  • Exhibit Hall Unopposed Times (Exhibit Hall Open All Day)
•  4:15 PM – 5:15 PM
  • Closing Keynote

*All times Eastern

Workshops, panel discussions, and other educational sessions were led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Scleroderma Conference is a great way to learn about the disease and to connect with others who are coping with scleroderma.

Questions about the National Scleroderma Conference should be directed to info@scleroderma.org, or (800) 722-4673.

The Conference is for adults with scleroderma. Programming on pediatric scleroderma is presented separately in the Kids Get Scleroderma, Too!, (KGS2) Conference. KGS2 is for children and teens who have scleroderma and their adult caregivers.