2023 National Scleroderma Conference

2023 National Scleroderma Conference

Join us at the Signia by Hilton Orlando Bonnet Creek, July 14, 15 and 16, 2023 for the National Scleroderma Conference.  This will be a hybrid conference, and virtual attendance will also be available for those unable to join us in person.

Registration information will be posted soon.

Sign up for National Conference e-alerts for more news on the 2023 National Scleroderma Conference in Orlando, Florida.

Reasons Why You Should Attend the National Patient Education Conference

  • Understand how to cope with the emotional challenges of living with scleroderma
  • Develop strategies for staying motivated
  • Meet people who want to take charge of their scleroderma, their health, and their lives
  • Build a support network and talk with others who share similar experiences
  • Learn about current therapies from the medical community
  • Be empowered to become a more effective partner in your own health care
  • Discover ways to increase public awareness of the disease
  • Make new, long-lasting friendships

About the National Conference

Did you know that the actual per person cost of hosting the conference is more than $700? We would like to thank our corporate sponsors and donors for helping to reduce the cost for participants.

Join us at our annual patient education conference in Orlando, Florida!  The conference offers an information-rich opportunity for people living with scleroderma, their caregivers, family members, and friends. We also offer the Kids Get Scleroderma, Too! Conference geared toward youth affected by scleroderma and their families. For more information on the Kids Get Scleroderma, Too! conference click here.

Workshops, panel discussions and other educational sessions are led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Conference is a great way to learn about the disease and become connected with others that are dealing with scleroderma.

Travel Information

Join us at our annual patient education conference in Orlando, Florida!  The conference offers an information-rich opportunity for people living with scleroderma, their caregivers, family members, and friends. We also offer the Kids Get Scleroderma, Too! Conference geared toward youth affected by scleroderma and their families. For more information on the Kids Get Scleroderma, Too! conference click here.

Workshops, panel discussions and other educational sessions are led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Conference is a great way to learn about the disease and become connected with others that are affected by scleroderma.

Information on how to book your hotel room will be posted here once available.

Hotel information:

Signia by Hilton Orlando Bonnet Creek
14100 Bonnet Creek Resort Lane
Orlando, FL 32821

PLEASE NOTE there are companies that may contact you who claim to be able to offer lower room prices than even our room block. These companies are not affiliated with the National Scleroderma Foundation or with the Signia by Hilton Orlando Bonnet Creek and they might not be legitimate. Entering into financial agreements with such companies may impact you negatively.

For any further questions, please contact our office at (800) 722-4673, or email info@scleroderma.org

Orlando International Airport (MCO)

One Jeff Fuqua Boulevard,

Orlando, Florida 32827

 

Hotel direction: 20 miles from MCO airport

This hotel does not provide shuttle service.

Alternate transportation: Mears transportation (pricing varies)

Estimated taxi fare: 70 USD (one way)

Transportation information

 

Driving directions: From Orlando International Airport (MCO)

  • Head east on Airport Blvd (1.3 miles)
  • Continue onto S Semoran Blvd (0.3 miles)
  • Take the ramp onto FL-528 W Partial Toll Road (10.9 miles)
  • Take the exit onto I-4 W toward Tampa (4.7 miles)
  • Take exit 67 toward Epcot/Disney Springs® (1.1 miles)
  • Merge onto Epcot Center Rd (0.7 miles)
  • Take the first exit to Disney Springs®/Typhoon Lagoon (0.30 miles)
  • At traffic light make a left onto Buena Vista Dr (0.2 miles)
  • At the next light turn left onto Chelonia Pkwy (1.1 miles)
  • Turn right onto Bonnet Creek Resort Lane, Signia by Hilton Orlando Bonnet Creek is the first right.

 

Other Transportation

Car Rentals

Orlando International Airport Car Rental Services

AVIS Rental Car

Plaza Garage, 8050 International Dr. Hollywood, Orlando, FL 32819

Budget Car Rental Car

8978 International Dr. Orlando, FL 32819

 

Train transportation to and from Miami

Brightline

The hotel offers overnight parking for $16 per day(plus taxes). This is a discounted rate for people attending the conference.

There are many options in Orlando for rentals. Here are some options:

Wheelchair/Scooter Rentals:

Orlando Medical Rentals

Florida Mobility Rentals

8600 Commodity Cir. #163, Orlando, FL 32819

Oxygen Rental:

Orlando Medical Rentals

Direct O2

About the Scholarship Program

More information on scholarships will be posted here when available.

The deadline to submit scholarship applications will be in March 2023.   If you have questions regarding scholarships, please contact us at (800) 722-4673.

For attendees, the National Conference brings hope to those who thought they were alone in the fight against scleroderma.

Thanks to the generous support of many donors and chapters, conference scholarships will be available to the 2023 National Scleroderma Conference in Orlando, Florida.

Conference scholarships are intended for those who would be unable to attend without outside financial assistance. We regret we are unable to assist all those who apply; however, the Foundation will use the resources of our scholarships funds to assist as many applicants as we are able. A committee administers the awards based on individual need and available funds. 

Support the Scholarship Program

Please help support the National Scleroderma Foundation Conference Scholarship Program by making a gift today. The more dollars we can raise together, the more opportunities we can create for new and aspiring attendees. Please click the Donate Now button to Make your donation online with a credit card. Also, please be sure to indicate that your gift is designated for the scholarship fund.

You can also donate via mail.  Be sure to check scholarship fund under how you would like to designate your gift. Checks should be made out the National Scleroderma Foundation. All proceeds raised for this fund will be used solely for scholarship purposes. Funds and form may be sent to the national office at:

National Scleroderma Foundation
Attn: Scholarship Fund
300 Rosewood Drive, Suite 105
Danvers, MA 01923

On behalf of all those who will receive scholarships to this year’s conference, we thank you for your generous support.

For More Information

Decisions regarding scholarship awards will be announced in April. For more information, please contact the National Office at (800) 722-4673 or email info@scleroderma.org

Exhibit Hall

Reserve your spot to showcase your products and services at the National Scleroderma Conference! The exhibit hall is open to all attendees during the conference, Friday – Sunday, with dedicated, unopposed times scheduled throughout each day. We drive attendee traffic to our exhibit hall through exciting incentive programs with prizes and by promoting our exhibitors on the conference website and in the program book.

*All exhibitors will receive a complimentary virtual booth on the conference platform!

Exhibit Opportunities

Tier 1: $2,080

Tier 2: $1,580

Tier 3: $1,080

Tier 1: $1,500

Tier 2: $1,125

Tier 3: $750

Tier 1: Organizations with an annual revenue of $3,000,000 or more

Tier 2: Organizations with an annual revenue of $500,001 – $2,999,999

Tier 3: Organizations with an annual revenue of $500,000 or less

Actelion
Bayer
Bodi Metrics
Boehringer Ingelheim
Corbus Pharmaceuticals
Cosy Soles
Feel Good
Health Advocacy Summit
Horizon Therapeutics
Kadmon
Laclede
OFEV
Protexgloves
Pulmonary Fibrosis Foundation
Pulmonary Hypertension Association
Reata Pharmaceuticals
Scleroderma Foundation Advocacy Program
Talaris Therapeutics
Yoga for Scleroderma
Steffans Scleroderma Foundation
Scleroderma Patient-centered Intervention
Network (SPIN)
United Therapeutics
Yoga for Scleroderma

If you are interested in exhibiting at this year’s conference or have any questions, please email our development team at corporate@scleroderma.org or call (800) 722-HOPE (4673)