2023 National Scleroderma Conference
Join us at the Signia by Hilton Orlando Bonnet Creek, July 14, 15 and 16, 2023 for the National Scleroderma Conference. This will be a hybrid conference, and virtual attendance will also be available for those unable to join us in person.
The conference offers an information-rich opportunity for people living with scleroderma, their caregivers, family members, and friends. We also offer the Kids Get Scleroderma, Too! Conference geared toward youth affected by scleroderma and their families.
Workshops, panel discussions and other educational sessions are led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Scleroderma Conference is a great way to learn about the disease and connect with others affected by scleroderma.
Registration information will be posted soon.
Sign up for National Scleroderma Conference eAlerts for more news on the 2023 conference.
Reasons Why You Should Attend the National Patient Education Conference
- Understand how to cope with the emotional challenges of living with scleroderma
- Develop strategies for staying motivated
- Meet people who want to take charge of their scleroderma, their health, and their lives
- Build a support network and talk with others who share similar experiences
- Learn about current therapies from the medical community
- Be empowered to become a more effective partner in your own health care
- Discover ways to increase public awareness of the disease
- Make new, long-lasting friendships
About the National Conference
Did you know that the actual per-person cost of hosting the conference is more than $700? We would like to thank our corporate sponsors and donors for helping to reduce the cost for participants.
Join us at our annual patient education conference in Orlando, Florida! The conference offers an information-rich opportunity for people living with scleroderma, their caregivers, family members, and friends. We also offer the Kids Get Scleroderma, Too! Conference geared toward youth affected by scleroderma and their families. For more information on the Kids Get Scleroderma, Too! conference click here.
Workshops, panel discussions and other educational sessions are led by leading scleroderma researchers and healthcare professionals. Whether you are newly diagnosed or have had scleroderma for many years, the National Conference is a great way to learn about the disease and become connected with others that are dealing with scleroderma.
Travel Information
Information on how to book your hotel room will be posted here once available.
Hotel information:
Signia by Hilton Orlando Bonnet Creek
14100 Bonnet Creek Resort Lane
Orlando, FL 32821
We have secured a room rate of $199 per night for the National Scleroderma Foundation room block. This rate will be available three days prior and three days post conference. The room rate is subject to hotel availability, so be sure to secure your room as soon as possible.
Please visit the following link to make your reservations now: https://book.passkey.com/go/HSCL23
PLEASE NOTE there are companies that may contact you who claim to be able to offer lower room prices than even our room block. These companies are not affiliated with the National Scleroderma Foundation or with the Signia by Hilton Orlando Bonnet Creek, and they might not be legitimate. Entering into financial agreements with such companies may impact you negatively. *Please note that our room rate is valid until June 25, 2023.
For any further questions, please contact our office at (800) 722-4673, or email info@scleroderma.org
Orlando International Airport (MCO)
One Jeff Fuqua Boulevard,
Orlando, Florida 32827
Hotel direction: 20 miles from MCO airport
This hotel does not provide shuttle service.
Alternate transportation: Mears transportation (pricing varies)
Estimated taxi fare: $70 USD (one way)
Driving directions: From Orlando International Airport (MCO)
- Head east on Airport Blvd (1.3 miles)
- Continue onto S Semoran Blvd (0.3 miles)
- Take the ramp onto FL-528 W Partial Toll Road (10.9 miles)
- Take the exit onto I-4 W toward Tampa (4.7 miles)
- Take exit 67 toward Epcot/Disney Springs® (1.1 miles)
- Merge onto Epcot Center Rd (0.7 miles)
- Take the first exit to Disney Springs®/Typhoon Lagoon (0.30 miles)
- At traffic light make a left onto Buena Vista Dr (0.2 miles)
- At the next light turn left onto Chelonia Pkwy (1.1 miles)
- Turn right onto Bonnet Creek Resort Lane, Signia by Hilton Orlando Bonnet Creek is the first right.
Other Transportation
Car Rentals
Orlando International Airport Car Rental Services
Plaza Garage, 8050 International Dr. Hollywood, Orlando, FL 32819
8978 International Dr. Orlando, FL 32819
Train transportation to and from Miami
The hotel offers overnight parking for $16 per day (plus taxes). This is a discounted rate for people attending the conference.
There are many options in Orlando for rentals. Here are some options:
Wheelchair/Scooter Rentals:
8600 Commodity Cir. #163, Orlando, FL 32819
Oxygen Rental:
Hotel and Conference Accommodations
There are many options in Orlando for rentals. Here are some options:
Wheelchair/Scooter Rentals:
8600 Commodity Cir. #163, Orlando, FL 32819
Oxygen Rental:
Promoting your safety and well-being is of utmost importance as we convene in person for the National Scleroderma Conference. We encourage you to work with your medical team to ensure appropriate personal safety precautions are considered for participation. Among other transmissible illnesses to be mindful of, we encourage you to visit the Centers for Disease Control and Prevention’s website for the latest on COVID-19 community transmission levels by region, along with current guidance on safely gathering.
About the Scholarship Program
For attendees, the National Conference brings hope to those who thought they were alone in the fight against scleroderma.
Thanks to the generous support of many donors and chapters, conference scholarships will be available to the 2023 National Scleroderma Conference in Orlando, Florida.
Conference scholarships are intended for those who would be unable to attend without outside financial assistance. We regret we are unable to assist all those who apply; however, the Foundation will use the resources of our scholarships funds to assist as many applicants as we are able. A committee administers the awards based on individual need and available funds.
Check back. Additional details about the scholarship program will be available soon. The deadline to submit scholarship applications will be in March 2023.
If you have questions regarding scholarships, please contact us at (800) 722-4673.
Support the Scholarship Program
Please help support the National Scleroderma Foundation Conference Scholarship Program by making a gift today. The more dollars we can raise together, the more opportunities we can create for new and aspiring attendees.
You can donate via mail. Be sure to check “scholarship fund” under how you would like to designate your gift. Checks should be made out the National Scleroderma Foundation. All proceeds raised for this fund will be used solely for scholarship purposes. Funds and form may be sent to the national office at:
National Scleroderma Foundation
Attn: Scholarship Fund
300 Rosewood Drive, Suite 105
Danvers, MA 01923
On behalf of all those who will receive scholarships to this year’s conference, we thank you for your generous support.
For More Information
Decisions regarding scholarship awards will be announced in April. For more information, please contact the National Office at (800) 722-4673 or email info@scleroderma.org
Exhibit Hall
Reserve your spot to showcase your products and services at the National Scleroderma Conference! The exhibit hall is open to all attendees during the conference, Friday – Sunday, with dedicated, unopposed times scheduled throughout each day. We drive attendee traffic to our exhibit hall through exciting incentive programs with prizes and by promoting our exhibitors on the conference website and in the program book.
*All exhibitors will receive a complimentary virtual booth on the conference platform!
Exhibit Opportunities
Tier 1: $2,080
Tier 2: $1,580
Tier 3: $1,080
Tier 1: $1,500
Tier 2: $1,125
Tier 3: $750
Tier 1: Organizations with an annual revenue of $3,000,000 or more
Tier 2: Organizations with an annual revenue of $500,001 – $2,999,999
Tier 3: Organizations with an annual revenue of $500,000 or less
Actelion
Bayer
Bodi Metrics
Boehringer Ingelheim
Corbus Pharmaceuticals
Cosy Soles
Feel Good
Health Advocacy Summit
Horizon Therapeutics
Kadmon
Laclede
OFEV
Protexgloves
Pulmonary Fibrosis Foundation
Pulmonary Hypertension Association
Reata Pharmaceuticals
Scleroderma Foundation Advocacy Program
Talaris Therapeutics
Yoga for Scleroderma
Steffans Scleroderma Foundation
Scleroderma Patient-centered Intervention
Network (SPIN)
United Therapeutics
Yoga for Scleroderma
If you are interested in exhibiting at this year’s conference or have any questions, please email our development team at corporate@scleroderma.org or call (800) 722-HOPE (4673)