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June is Scleroderma Awareness Month. We know that every person’s experience with scleroderma is unique. Each June, the National Scleroderma Foundation shines a light on individual journeys with scleroderma by sharing stories from members of our community, hosting special #TealTalk events, and Stepping Out to Cure Scleroderma events. Awareness Month will culminate on World Scleroderma Day, […] 
The Boardman/Youngstown Support Group holds hybrid meetings on the first Monday of the month. The meetings are on Zoom and at Davidson's Restaurant on Canfield Rd. in Canfield. To register […] 
Just like each of our lives are different, so are our lived experiences with scleroderma. One thing we all seem to have in common is that at some point in […] |
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The Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of the month at 3:00 p.m. ET. Please click here to register in advance. A meeting link will be […] 
The new Teen Support Group meets at 7:30 p.m. ET on the first Tuesday of the month. To participate, please complete this interest form. Elle Hurley, manager of support programs, […] |
3 events,
This support group is in-person. For more information, please email support@scleroderma.org 
To register & for more information, please email djames@scleroderma.org 
To register & for more information, please email floridaprchapter@scleroderma.org |
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Registration starts at 8:00 a.m. Walk starts at 8:45 a.m. Register by May 28, 2026, to guarantee your t-shirt. Feel free to wear as much teal as you like! CLICK HERE TO REGISTER
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Join us for 2026 Stepping Out to Cure Scleroderma Boardman, OH When: June 6, 2026 Where: Boardman Park, 375 Boardman Poland Road, Boardman, OH Registration Time: 8:30 a.m. Walk Time: 10:00 a.m. Click here to register. "As beacons of hope we see how each act can create extraordinary change." - Leni Schulz, Mariann & Kevin Boyanowski
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New England Scleroderma Education Day Doors Open 8:30 AM Time: 9:00 AM – 12:00 PM In Person Registration Link: https://gqr.sh/xcLg Virtual Registration Link: https://host.nxt.blackbaud.com/registration-form/?formId=ba91ce91-66c3-41fe-970b-1552d76d8d27&envId=p-JWRarjDScUO0zGLKk5a83g&zone=usa
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Join us for Stepping Out to Cure Scleroderma Portland! When: June 6, 23026 Where: Columbia Park, 4503 N Lombard St, Portland, OR 97203 Registration: 9:00 a.m. Walk Begins: 10:00 a.m. Click here to register. Register by May 6, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission!
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Please join us for our second annual walk...meet new friends and have some fun while you join us in our fight against scleroderma...together we can help support people living with scleroderma, raise awareness and ultimately find a cure! When: June 6, 2026 Where: McClelland Pavilion-North, Strabane Municipal Park, 1929 Rt 519, Canonsburg, PA Registration Time: […] 
To register & for more information, please email rmchapter@scleroderma.org 
To register & for more information, please email floridaprchapter@scleroderma.org
Virtual Event
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Virtual Event
The National Scleroderma Foundation is excited to introduce the Scleroderma & Endometriosis Support Group as one of our newest support groups. This support group welcomes anyone who is impacted by scleroderma and endometriosis. Both of these conditions can feel isolating at times, and building community is important for everyone on this journey. We hope to […] |
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Register by May 25, 2026, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! CLICK HERE TO REGISTER |
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This group will meet virtually on the 2nd Thursday of each month. CLICK HERE TO REGISTER |
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Join our parent support group and connect with other parents who understand the challenges of scleroderma. Click here to register in advance. A meeting link will be shared after registration. For more information, please email support@scleroderma.org. |
4 events,
To register & for more information, please email NEchapter@scleroderma.org
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DROP-IN Support Group Meeting via Zoom – drop in to say hello or stay, to give/get support. CLICK HERE TO REGISTER IN ADVANCE
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Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group will help navigate these questions and support newly diagnosed individuals. Click here to register in advance. A meeting […] |
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To register & for more information, please email uglchapter@scleroderma.org |
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The National Scleroderma Foundation is proud to present the second Advances in Scleroderma Research Global Webinar of 2026! Date: Friday, June 12, 2026 Time: 9:00 AM – 10:30 AM ET Presenters: Kazuki M. Matsuda, MD, PhD: Autoantigenomic Analysis for Systemic Sclerosis Utilizing In Vitro Human Proteome Harry Karmouty-Quintana, PhD, and Shervin Assassi, MD: The Adipocyte Switch: […] |
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Join us for Stepping Out to Cure Scleroderma - Salt Lake City on Saturday, June 13. Our walk also serves as a powerful gesture of support for individuals and families currently battling Scleroderma right here in our region. By participating, we show them they are not alone. We raise awareness, share resources, and offer encouragement. Every […]
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Join us for Stepping Out to Cure Scleroderma Crown Point! When: Saturday, June 13, 2026 Where: Lake County Indiana Fairgrounds, 889 S. Court Street, Crown Point, IN Registration: 9:00 a.m. Walk Begins: 10:00 a.m. Click here to register. Register by May 27, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show your support of our […]
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For 10 years, the Deer Island Stroll has brought our community together with one shared goal; supporting those affected by scleroderma. We are honored and excited to celebrate this milestone together. Register by June 1, to guarantee your t-shirt. Click here to register: 2026 Stepping Out - Deer Island Stroll, MA Where: Deer Island, 190 […]
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Registration starts at 9:00 AM. The walk starts at 10:00 AM. Register by May 23, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! CLICK HERE TO REGISTER 
To register & for more information, please email pcollins@scleroderma.org 
The Denver Mile High Support Group is hybrid and meets on the second Saturday of every month. Starting in January and through April, the meetings will only be held virtually. To register & for more information, please email rmchapter@scleroderma.org 
For more information, please email floridaprchapter@scleroderma.org Use this link to register in advance: https://us02web.zoom.us/meeting/register/qWft8jCtQk6HUjt_qnfyrQ#/ 
For more information, please email floridaprchapter@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom This support group only meets during the odd months of the year. 
Segundo sábado del mes a las 11:00 a.m. ET 📩 Tras registrarse, recibirá un correo de confirmación con el enlace para unirse al evento. Envíe un correo electrónico a support@scleroderma.org para obtener más información. 
To register & for more information, please email sechapter@scleroderma.org 
We are excited to announce the launch of a new scleroderma support group serving the Greater Nashville, Tennessee area. This meeting is for brief introductions and discussion of goals for this group, format (Zoom, in person, hybrid), and frequency (ex: monthly) going forward in 2026. Meeting is open to people with scleroderma as well as […] |
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Registration starts at 9:00 AM. The walk starts at 10:00 AM. Register by May 24, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! CLICK HERE TO REGISTER |
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If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will be on the third Tuesday of every month from 7:00-8:30 p.m. ET. Click here to register in advance for this meeting. After registering, you will receive a […] 
The Virtual Localized Scleroderma Support Group will meet at 7 p.m., Eastern, 3rd Tuesday of each month. Click here to register in advance. A meeting link will be shared after registration. If you're interested in learning more or joining, please email localizedSG@scleroderma.org. 
For more information, please email support@scleroderma.org |
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To register & for more information, please email westmetrosupport_ugl@scleroderma.org |
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For more information, please email dcharlton@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom |
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Join us for the annual Stepping Out to Cure Scleroderma Northern Colorado walk on June 20, 2026. Our walk also serves as a powerful gesture of support for individuals and families currently battling scleroderma right here in our region. By participating, we show them they are not alone. We raise awareness, share resources, and offer encouragement. Every step […] 
To register & for more information, please email support@scleroderma.org
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Registration starts at 9:30 am. The walk starts at 10:30 am. Register by May 28, 2026, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! CLICK HERE TO REGISTER
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Registration starts at 9:30 AM. The walk starts at 10:30 AM. Register by May 30, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! CLICK HERE TO REGISTER 
Please note the date change. The June Pacific Northwest Support Group meeting will be held on Saturday, June 20. To register & for more information, please email cfidalgo@scleroderma.org 
To register & for more information, please email rmchapter@scleroderma.org
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We are excited for our new walk location that will take place at the St. Paul Saints baseball game! It’s going to be bigger, louder, and more fun than ever. Register by June 6, 2026, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! […] |
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To register & for more information, please email sechapter@scleroderma.org |
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If you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration. 
Scleroderma diagnoses are less common amongst men. In fact, only 20% of the patient population is made up of males. We’ve designed a support group especially for males with scleroderma. Please click here to register in advance. A link to the meeting will be sent to you after registration. |
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Please click here to register in advance. To register & for more information, please email uglchapter@scleroderma.org
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The Caregivers Support Group meets on the 4th Thursday of the month at 7:00 p.m. ET. Click here to register. A link to the Zoom meeting will be sent after you register. |
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Join us for the Stepping Out to Cure Scleroderma Nashville walk. When: Saturday, June 27, 2026 Where: West Park, 6105 Morrow Road, Nashville, TN Registration: 9:00 a.m. Walk Begins: 10:00 a.m. Click here to register. Register by June 5, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show your support of our mission!
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Joins for Stepping Out to Cure Scleroderma Rockland, NY. When: June 27, 2026 Where: Rockland Lake State Park--299 Rockland Lake Rd, Valley Cottage, NY 10989 Registration: 9:30 a.m. Walk Begins: 10:30 a.m. Click here to register. Register by June 6, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part […] 
To register & for more information, please email djames@scleroderma.org 
To register & for more information, please email NEchapter@scleroderma.org 
To register & for more information, please email rmchapter@scleroderma.org This group meets on the fourth Saturday of even months. 
To register & for more information, please email NEchapter@scleroderma.org This group also meets virtually at 1:30 pm ET.
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This inspiring event brings together patients, families, friends, and supporters to raise awareness and funds for scleroderma research, education, and support programs. Every step makes a difference – whether you walk in honor of someone you love or to show your support for the cause, you’ll be helping bring hope and progress to those affected […] |
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Registration starts at 10 AM. The walk starts at 11 AM. Register by June 12, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! CLICK HERE TO REGISTER |
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Scleroderma Awareness Month culminates on World Scleroderma Day, June 29. World Scleroderma Day highlights the need to increase awareness of scleroderma and to advocate for those affected by this life-threatening disease. June 29 was selected in 2009 by FESCA (Federation of European Scleroderma Associations) as World Scleroderma Day to commemorate Paul Klee, a gifted abstract […] 
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To register & for more information, please email rmchapter@scleroderma.org |
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This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option. The library is inside of Walden's Municipal Building, and the community room is on the second floor. You need to enter the main door of the Municipal Building instead of the library's entrance to access the elevator. Contact […] |
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This support group is in-person. For more information, please email support@scleroderma.org
To register & for more information, please email floridaprchapter@scleroderma.org |
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To register & for more information, please email rmchapter@scleroderma.org
To register & for more information, please email floridaprchapter@scleroderma.org |
