Local Programs

National Scleroderma Foundation chapters host events within their communities for individuals living with scleroderma, their family members and support networks throughout the year.

Use the search tool on this page to find a program by zip code or state to help define the distance you’re willing to travel to attend. Many programs are also offered virtually, and those are included in the search as well. You can also visit a specific chapter’s webpage to learn more about their educational offerings.

Below are featured examples of chapter educational events:

Annual Amy K. Parrish Patient Education Conference

Offered annually by the South Carolina Chapter in collaboration with the Medical University of South Carolina (MUSC) to honor the memory of Amy K. Parrish, former South Carolina Chapter President, who lost her battle with scleroderma in 2010. Amy led the chapter for over 20 years and she was a fierce advocate for patient and family scleroderma education. She always said that “Knowledge Is Power” and that is what the South Carolina Chapter and MUSC offer each year to the conference participants.

20th Annual Cheri Woo Scleroderma Education Seminar

The Oregon Chapter‘s annual Cheri Woo Scleroderma Education Seminar is a free educational event. Anyone interested in learning more about scleroderma is welcome to attend. Cheri J. Woo, who died in 2007 after a long struggle with Scleroderma and cancer, served the Oregon Scleroderma Chapter with distinction for more than a decade as a board officer, awareness advocate, fundraising specialist, patient supporter, and education promoter.

Sclero-What? Annual Scleroderma Regional Education Day

Presented annually by the Heartland Chapter (Iowa, Nebraska, and South Dakota)

Annual Idaho Scleroderma Education Conference

Offered by the Northwest Chapter‘s Southern Idaho Scleroderma Support Group for people with scleroderma, caregivers, family members, and health care providers. Hear leading scleroderma experts discuss a range of topics to help you manage symptoms and live your best life.