Scleroderma Support Groups

COVID statement

To protect the health of all individuals who are affected by scleroderma, it is the policy of the National Scleroderma Foundation to not conduct in-person meetings of support groups or other Foundation activities. Learn more about the Foundation’s Medical & Scientific Advisory Board’s recommendations regarding COVID-19.

instruction

Use this directory to search for a support group near you. You may also contact the National Office to locate a group. There are more than 100 National Scleroderma Foundation-affiliated support groups around the country. Contact the group leader to gain access to the meeting location or to receive the virtual meeting link. Many groups have switched to online or telephone meetings to maintain contact during the pandemic. Support group leaders are trained volunteers.

Search
States
Topics
Zip Code
Miles
Virtual & In-person
99 results found

STATE NAME
WA
City/Area Name
Tri-Cities Area
Group Leader Name
Chris Slotemaker
Meeting Frequency
Contact Group Leader for Schedule

STATE NAME
SC
City/Area Name
Piedmont
Group Leader Name
LaKesha Williams
Meeting Frequency
Contact Group Leader for Schedule

NM New Mexico Albuquerque

topic
Teens and Parents
STATE NAME
New Mexico
City/Area Name
Albuquerque
Group Leader Name
Maria Tafoya, Jackie Martinez, Debra Droux
Meeting Frequency
4th Wednesday, Monthly, 6 PM Mountain

topic
Young Adults
STATE NAME
NJ
Group Leader Name
Amanda Lippincott, Young Adults, 18 to 30's
Meeting Frequency
1st Thursday, monthly, 7:30 - 8:30 PM ET

topic
Young Adults
STATE NAME
NY
Group Leader Name
Amanda Lippincott and Tiare Tolzmann
Meeting Frequency
Contact Group Leaders for Schedule

topic
Parents of Children with Scleroderma
STATE NAME
MI
Group Leader Name
Pamela Pour
Meeting Frequency
1st Wednesday, Even Months, 7:30 - 9 PM, 1st Wednesday, Odd Months, 3:00 – 4:30 PM

topic
BIPOC
STATE NAME
NY
Group Leader Name
Marilyn Sibley
Phone
585-723-1026
Meeting Frequency
Contact Group Leader for Schedule

topic
Phone Support
STATE NAME
WV
City/Area Name
Weirton
Group Leader Name
Sandra Fennych, Telephone Support
Meeting Frequency
Contact Group Leader for Schedule

STATE NAME
WV
City/Area Name
Huntington
Group Leader Name
Karen Baker
Meeting Frequency
Contact Group Leader for Schedule