On February 28, we join the global community in recognizing Rare Disease Day, a time to raise awareness and advocate for those living with rare conditions like scleroderma. With more than 300 million people worldwide affected by rare diseases, this day is a powerful reminder of the need for research, support, and improved access to care.
Scleroderma is a chronic, autoimmune disease that affects around 300,000 Americans. While it is classified as a rare disease, its impact is profound, touching the lives of patients, caregivers, and loved ones in ways that extend far beyond the diagnosis. Many individuals with scleroderma face significant challenges, including delayed diagnosis, limited treatment options, and the daily struggles of managing symptoms. That’s why awareness and advocacy matter – so that those living with rare diseases can receive the care, support, and recognition they deserve.
At the National Scleroderma Foundation, we stand with the rare disease community, amplifying voices, sharing stories, and pushing for progress.
How You Can Get Involved
💙 Wear Teal – Show your support by wearing teal, the color of scleroderma awareness, on Rare Disease Day.
💙 Share a Photo – Post a picture wearing teal and use #RareDiseaseDay to spread the message. Let others know why raising awareness for scleroderma matters to you.
💙 Spread the Word – Talk about Rare Disease Day with friends, family, and colleagues. Every conversation brings us one step closer to greater awareness and understanding.
Every voice matters. Every action counts. Together, we can make a difference.
