Stepping Out - Pacific Northwest Serving Alaska, Idaho, Oregon, and Washington

Upcoming Stepping Out to Cure Scleroderma Events

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Florida & Puerto Rico News March 12, 2026 Patient Partnership Is Essential to Accelerating Therapies in Rare Diseases

National Scleroderma Foundation CEO, Mary J. Wheatley, IOM, CAE, joined the global scleroderma community at the 9th Systemic Sclerosis...
Florida & Puerto Rico News March 10, 2026 Scleroderma Researchers Gather for Systemic Sclerosis World Congress

More than 1,000 clinicians and researchers joined together for the 9th Systemic Sclerosis World Congress. Organized by the World Scleroderma Foundation, the event runs...
Advocacy March 9, 2026 Registration Open for Spring 2026 Virtual Hill Days

The National Scleroderma Foundation and our network for patient advocates are preparing for our next Virtual Hill Days meetings....
Advocacy February 6, 2026 Foundation Participating in Rare Disease Week in Washington, D.C.

The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities...