The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities organized by the Rare Disease Legislative Advocates (RDLA), February 24-26, 2026.
We are excited to join advocates from across the country in Washington, DC, to raise awareness for scleroderma, meet with lawmakers, and ensure the voices of our community are heard. It is a powerful opportunity to advocate for progress, connect with patients and families, and learn directly from the stories and experiences that inspire our work every day.
We look forward to making a difference together on Capitol Hill and continuing the fight for better research, resources, and support for everyone impacted by scleroderma.
Will you be attending Rare Disease Week or Rare Disease Day events in DC? We would love to know! Please reach out and let us know if you plan to be there by sending an email message to apruett@scleroderma.org. We’d be honored to connect with you in person.
