One Community. Countless Stories. Unstoppable Strength

The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.


Florida & Puerto Rico Chapter

Since 2023, our chapter has united, expanding throughout Florida and Puerto Rico under one banner, recognizing the strength in collaboration. We’re dedicated to serving patients and caregivers across our region by tailoring our support groups, education events, and advocacy efforts to meet the diverse needs of those in our community. Whether you’re seeking support, interested in volunteering or considering a donation, we welcome you to join our community and be part of our mission to make a difference in the lives of those affected by scleroderma.