The National Scleroderma Foundation and our network for patient advocates are preparing for our next Virtual Hill Days meetings. Scleroderma advocates from across the country will meet with Congressional staff members about the key legislative priorities of the scleroderma community.
“Virtual Hill Days are a great way for our community members to speak directly with Congressional offices who can help support legislation that will improve the lives of people affected by scleroderma and other rare disease,” Ashley Pruett, National Scleroderma Foundation Vice President of Community Engagement, said.
The legislative meetings will be held April 8 and 9, and are scheduled at a crucial point in the FY2027 budget process.
“Last year, our advocates shared their unique stories and helped ensure that scleroderma remained eligible for critical medical research,” Pruett said.
Foundation community members interested in joining Virtual Hill Days can register here. Please register by March 20 to allow our team time to schedule meetings with the appropriate staff members. All participants in Virtual Hill Days must also register for and complete the mandatory Virtual Hill Days Training on April 1. Meeting information for the training session will be shared after completing registration for Virtual Hill Days.
Visit the Foundation website to learn more about our legislative priorities and how you can get involved in advocacy.