Scleroderma Support Groups

COVID statement

To protect the health of all individuals who are affected by scleroderma, it is the policy of the National Scleroderma Foundation to not conduct in-person meetings of support groups or other Foundation activities. Learn more about the Foundation’s Medical & Scientific Advisory Board’s recommendations regarding COVID-19.

instruction

Use this directory to search for a support group near you. You may also contact the National Office to locate a group. There are 155 National Scleroderma Foundation-affiliated support groups around the country. Contact the group leader to gain access to the meeting location or to receive the virtual meeting link. Many groups have switched to online or telephone meetings to maintain contact during the pandemic. Support group leaders are trained volunteers.

Search
Topics
Zip Code
Miles
Virtual & In-person
136 results found
topic
Young Adults
STATE NAME
NJ
Group Leader Name
Amanda Lippincott, Young Adults, 18 to 30's
Meeting Frequency
1st Thursday, monthly, 7:30 - 8:30 PM ET
topic
Young Adults
STATE NAME
NY
Group Leader Name
Amy Gietzen, Scleroderma Young Adults Needing Connection
Meeting Frequency
Contact Group Leader for Schedule
topic
Parents of Children with Scleroderma
STATE NAME
MI
Group Leader Name
Tracey DuVall, Parents of Children with Scleroderma
Meeting Frequency
1st Wednesday, Even Months, 7:30 - 9 PM
topic
BIPOC
STATE NAME
NY
Group Leader Name
Marilyn Sibley, BIPOC
Meeting Frequency
Contact Group Leader for Schedule
STATE NAME
WY
City/Area Name
Wyoming
Group Leader Name
Dolores Pfeuffer-Scherer
Meeting Frequency
2nd Tuesday, monthly, 12 PM MT
topic
Phone Support
STATE NAME
WV
City/Area Name
Weirton
Group Leader Name
Sandra Fennych, Telephone Support
Meeting Frequency
Contact Group Leader for Schedule
STATE NAME
WV
City/Area Name
Huntington
Group Leader Name
Karen Baker
Meeting Frequency
Contact Group Leader for Schedule
STATE NAME
WI
City/Area Name
Madison Area
Group Leader Name
Jennifer Meier
Meeting Frequency
Contact Group Leader for Schedule
STATE NAME
WA
City/Area Name
Seattle
Group Leader Name
Kris Garthe
Meeting Frequency
3rd Thursday, monthly, 2 PM PT