Find a Treatment Center

University of Alabama at Birmingham

1720 2nd Avenue S, Birmingham, AL 35294
205-934-9999
https://www.uabmedicine.org/specialties/clinical-trials/

• Amanda Alexander, MD
• Tracy Luckhardt, MD (pulmonary)
• Teja Kulkarni, MD (pulmonology)
• Lauren Graham, MD (dermatology)
• Jose Tallaj, MD (cardiology)
• Fed Weber, MD (gastroenterology)

The University of Arizona ILD Center

3838 N Campbell Avenue Clinic F, Tucson, AZ 85719
520-694-8888

• Research Coordinator: Heidi Erickson
• Kent Kwoh, MD
• Arista Chand, MD
• Bhupinder Natt, MD
• Kenneth S. Knox, MD
• Tammer Elaini, MD
• Marybeth Jamison, NP

Mayo Clinic — Arizona

13400 E Shea Blvd Scottsdale AZ 85259
480-301-8368
New patient records fax: 480-301-8368
RN Ashley Baire – Scleroderma Nurse Program Coordinator. Phone: 480-301-8368

• Vivek Nagaraja, MD, FACR (Rheumatology Division Chair and Scleroderma Program Director)
• Michael Pham, MD (Co-Director, Scleroderma Program)
• Ashley Baire, RN
• Ana Zamora Martinez, MD Pulmonary/Interstitial Lung Disease
• Lewis Wesselius, MD, Pulmonary/Interstitial Lung Disease
• Robert W. Viggiano, MD, Pulmonary/Interstitial Lung Disease
• Robert L. Scott MD, PhD, Cardiology/Pulmonary Hypertension
• Karen L. Swanson, DO, Pulmonary/Pulmonary Hypertension
• Marcelo F. Vela, MD, Gastroenterology/Esophageal
• Allon Kahn, MD, Gastroenterology/Esophageal
• Francisco C. Ramirez, MD, Gastroenterology/Esophageal
• Tisha N. Lunsford, MD, Gastroenterology/Motility & Rectal Disorders
• Lucinda A. Harris, MD, Gastroenterology/Motility & Rectal Disorders
• Aaron R. Mangold, MD, Dermatology
• Elika Hoss, MD, Dermatology Surgery and Cosmetic Procedures
• Anthony A. Smith, MD, Hand Surgery/Plastic and Reconstructive Surgery

Stanford University Scleroderma Center

450 Broadway Redwood City CA 94063
650-723-6316
swarnan@stanford.edu

• Lorinda Chung, MD
• David Fiorentino/Matthew Lewis/Jennifer Yeh (Dermatology)
• Tamiko Katsumoto (Rheumatologist)
• Robert Fairchild (Rheumatology)
• Rishi Raj/Joshua Mooney (Pulmonary)
• John Clarke (GI)
• Francois Haddad (Cardiology)
• Roham Zamanian/Kristina Kudelko/Yon Sung/Andrew Sweatt (PH)
• James Chang (Hand Surgery)

University of California, Los Angeles

200 UCLA Medical Plaza, Suite 365
Los Angeles CA 90095 310-825-2448
310-794-6213

• Elizabeth Volkmann, MD (Director of UCLA Scleroderma Center)
• Arissa Young, MD
• Heather Bukiri, MD
• Suzanne Kafaja, MD” “Gastroenterologists: Terri Getzug, Lisa Lin
• Cardiology: Eric Yang
• Pulmonary: Sam Weigt, Rajan Saggar, John Belperio, Augustine Chung, Allison Ramsey, Ariss Dehorvanessian, David Sayah, Richard Watson
• Radiology: Andrea Oh, Jonathan Goldin, Lila Pourzand
• Pulmonary: Greg Fishbein
• Dermatology: Kyle Cheng
• Nuclear Medicine: Jeremie Calais

Loma Linda University Health Scleroderma Center of Excellence

11370 Anderson Street, Suite 3650
Loma Linda CA 92354
909-558-2860 or 909-558-2860

• Vaneet K Sandhu, MD
• Karina Torralba, MD
• Christina Downey, MD
• Heather Gillespie, MD
• Niranjan Jeganathan, MD (pulmonary)
• Dafne Moretta, MD (pulmonary)
• Laren Tan,MD (pulmonary)
• Nour Parsa, MD (gastroenterology)
• Andrew Chang, MD (gastroenterology)
• Penny Stack, OTD, OTR/L,CTL

Cedars-Sinai Scleroderma Program

8723 Alden Dr Spielberg, Suite 250
Los Angeles CA 90048
310-423-6257

• Research Coordinator: Marianne Bernardo
• Francesco Boin, MD
• Pulmonary: Dr. Paul Noble, Dr. Yuri Matusov, Dr. Tanzira Zaman
• Cardiology: Dr. Antoine Hage, Dr. Eugenio Cingolani
• Gastroenterology: Dr. Ali Rezaie
• Plastic/Hand Surgery: Dr. Ryu Yoshida
• Dermatology: Dr. Susan Rabizadeh
• Nephrology: Dr. Theresa Henke
• Lung Transplant: Dr. Reinaldo Rapolla, Dr. Lorenzo Zaffiri, Dr. Pedro Catarino

Arthritis & Rheumatology Clinic — San Diego

4282 Genesee Ave, Suite 202 San Diego CA 92117
858-284-0070

• Surabhi A. Khanna, MD

National Jewish Health

1400 Jackson Street Denver CO 80205
877-225.5654 / 1.877.CALL.NJH
EliopoulosK@NJHealth.org
For inpatient admission National Jewish Health/St. Joseph Hospital

• Mehrnaz Maleki Fischbach,MD
• Liudmila Kastsianok, MD
• Smarika Sapkota,MD
• GI: Arash Babaie
• ILD: Jeff Swigris, Rebecca Keith, Zulma Yunt, Michael Mohning
• Pulmonary Hypertension/Cardiology: Patty George and Darlene Kim

Children’s Hospital Colorado

13123 E 16th Ave Aurora CO 80045
720-777-6132

• Katharine Moore MD
• Jessica Bloom MD
• Jennifer Cooper MD
• Megan Curran MD
• Clara Lin MD
• Robert Fuhlbrigge MD
• Katherine Nowicki MD
• J.Brian Shirley DO
• Jennifer Soep MD
• Gabriel Tarshish MD
• Kentaro Yomogida MD
• Anna Bruckner MD, Dermatology
• Lori Prok MD, Dermatology
• Robin Deterding MD, Pulmonology
• Dunbar Ivy MD, Cardiology / Pulmonary Hypertension
• Amy Kanallakan MD, Physical Medicine and Rehabilitation
• Edwin Liu MD, Gastroenterology
• Bradley Dixon MD, Nephrology

University of Colorado

1635 Aurora Court Anschutz Outpatient Pavilion
7th floor Aurora CO 80045
720-848-0748

Research Coordinator: Haylie Lengel for ILD studies: haylie.lengel@cuanschutz.edu

• Melissa Griffith, MD
• Kristen Demoruelle, MD, PhD
• Jason Kolfenbach, MD (sees with fellows only)
• Chris Striebich, MD, PhD (sees with fellows only)
• Nick Kortan, MD (sees with fellows)

Pulm and PH pulm:

• Joyce Lee, MD
• Bridget Graney, MD
• Yael Aschner, MD
• Jenny Williams, PA-C
• Todd Bull, MD
• David Badesch, MD
• Peter Hountras, MD
• Sue Gu, MD
• Bryan Park, MD
• Lindsey Forbes, MD
• Yen-Rei Yu, MD, PhD
• Genevieve Boddie, NP

GI:

• Kelli Delay, MD
• Paul Menard Katcher, MD

Hand:

• Matt Iorio, MD

Yale Scleroderma Program

300 Cedar Street S470 New Haven CT 06519
203-287 6200

• Monique Hinchcliff MD MS
• Ian Odell MD (Dermatology)

UCONN Health Division of Rheumatology

135 Dowling Way, Farmington, CT 06030
860-679-2160

• Mallory Edrich BSN,RN | Research Nurse, Office: tel 860.679.4219 | Fax: 860.679.1281
• Santhanam Lakshminarayanan, MD
• Dr. Raymond Foley (Pulmonary Hypertension Center)

Georgetown University Scleroderma Center

3800 Reservoir Road, PHC 3004. Washington DC 20007
202-444-6215
Research Coordinator: Destiny Barksdale 202-444-6206

• Virginia Steen, MD
• Patients are referred to appropriate consultants within the Medstar Georgetown University Hospital Center including Dr. Christine Fleury (pulmonary) Dr. Angelica Nocerino, (gastroenterology) and Dr. Farooq H. Sheikh.

Mayo Clinic Florida

4500 San Pablo Road Jacksonville FL 32224
904-953-2000

• Andy Abril, MD
• Vikas Majithia, MD
• Ronald Butendieck, MD
• Benjamin Wang, MD
• Florentina Berianu, MD
• Anushka Irani, MD
• Charles Burger (Pulmonary Medicine, Pulmonary hypertension Clinic)
• Augustine Lee, Hasan Baig (Pulmonary Medicine interstitial lung disease clinic)
• Kenneth deVault (Gastroenterology, esophageal dysmotility Clinic)
• Jason Sluzevich ( Dermatology connective tissue Disease Clinic)

Northwestern University Scleroderma Program

675 N. St. Clair St., Ste. 14-100, Chicago, IL 60611
312-695-8628
Kathleen Aren (kathleen.aren@northwestern.edu) and Alex Soriano (alexandra.soriano@northwestern.edu)

• Carrie Richardson, MD
• Duncan Moore, MD” “Gastroenterology – Darren Brenner, Ikuo Hirano
• Pulmonology – Jane Dematte, Brad Bemiss, Anthony Esposito, Michael Cuttica, Ruben Mylvaganam
• Cardiology – Sanjiv Shah, Ben Freed
• Dermatology – Jennifer Shastry, Cuong Nguyen, Joshua Prenner

New Orleans Scleroderma and Sarcoidosis Research Center

2000 Canal Street, New Orleans, LA 70112
504-822-6653 phone
504-822-6633 fax
Research Tel: 504-336-2667

• Lesley Ann Saketkoo,MD
• Matthew Lammi, pulmonary
• Amita Krishnan, pulmonary
• Ben deBoisblanc, pulmonary
• Murtuza Ali, cardiology
• Catherine Hudson, gastroenterology
• Research Coordinator: Dylan Touchet
• Regulatory Director: Reggie Mister”

Boston University Scleroderma Program Clinical Offices

725 Albany Street, 8th Fl. Suite 8A, Boston, MA 02118
617-358-6171

• Andreea Bujor, MD, PhD
• Marcin Trojanowska, MD
• Michael York, MD

https://www.bmc.org/scleroderma

Massachusetts General Hospital – MGH Boston – Scleroderma Program

55 Fruit St, Yawkey 4B, Boston, MA 02114
617-726-7938
Alison Puri, 617-643-6694, apuri3@mgh.harvard.edu

• Flavia Castelino, MD
• Marcy Bolster, MD
• Sara Schoenfeld, MD

The Johns Hopkins Scleroderma Center

5501 Hopkins Bayview Circle, Baltimore, MD 21224
410-550-7715 or 410-550-8582

• Fredrick M. Wigley, MD
• Laura K. Hummers, MD, ScM
• Ami Shah, MD, MHS
• Julie Paik, MD, MHS
• Chrisopher Mecoli, MD, MHS
• Rachel Wallwork, MD, MHS
• Robert Wise, MD (pulmonary)
• Matthew Lammi, MD (pulmonary)
• Paul Hassoun, MD (pulmonary)
• Stephen Mathai, MD (pulmonary)
• Todd Kolb, MD (pulmonary)
• Rachel Damico, MD (pulmonary)
• Scott Lifchez, MD (plastic/hand surgery)
• Monica Mukherjee, MD (cardiology)
• Stephen Hsu, MD (cardiology)

University of Michigan Scleroderma Program

1500 E Medical Center Dr, Ann Arbor, MI 48109
734-647-5900 OR 888-229-3065
Michael Lang, ssc-coordinator@umich.edu

• Dinesh Khanna, MD
• John Varga, MD
• Erica Mulcaire-Jones, MD
• Carleigh Zahn, MD
• Justin Oldham
• Kevin Flaherty
• Val McLaughlin
• David O’Dwyer
• Jennifer Waljee

Rutgers- RWJ Medical School 1

25 Paterson Street, CAB 5100, New Brunswick, NJ 08903
732-235-7217
Fei Chen & Halina Malveaux

• Vivien Hsu, MD
• David Roofeh, MD” “Dr. Sarah Ofranos
• Dr. Kenneth Dulnuan
• Dr. Deepa Iyer

Joseph M Sanzari Children’s Hospital

Hackensack University Medical Center Department of Pediatrics, Division of Pediatric Rheumatology
30 Prospect Avenue, WFAN 337 Hackensack NJ 07601
551-996-5306
Mary Ellen Riordan, maryellen.riordan@hmhn.org

Jersey Shore Medical Center
19 Davis Avenue, Floor 5, Neptune, NJ 07753

• Suzanne Li, MD PhD
• A Carmela Gironella, MD MS
• Suhas Ganguli, MD
• Cardiologist: Gabriel Rama
• Dermaologists: Emily Berger, Julie Schaffer, Helen Shin
• Gastroenterologists: Sharon D’Mello Hilton, Payal Makadia, Elaine Moustafellos
• Pulmonologists: Donna Lee, Gurpreet Phull
• Nephrologist: Kenneth Lieberman

Albany Medical College Scleroderma Center

Rheumatologists: Lee Shapiro, MD
Michael Allen, MD
Clinical Pharmacist: Jessica Farrell, Pharm.D

Locations:
6 Medical Park Drive, Malta, NY. 12020
99 Delaware Ave, Delmar, NY. 12054
Phone: 518 264-1200
Fax: 518 264-1204

Columbia University Medical Center/New York-Presbyterian Hospital Scleroderma Program

161 Fort Washington Avenue New York NY 10032

• Elana J. Bernstein, MD, MSc, Rheumatology

The Scleroderma and Raynaud’s Treatment Center

865 Northern Blvd, Suite 302, Great Neck, NY 11201
516-708-2550

• Himanshu Vashistha
• Sonali Narain, MD N/A

Scleroderma, Vasculitis & Myositis Center (HSS)

525 East 71 Street, 7th Floor New York NY 10021
212-774-2048

• Research Coordinator: Liza Morales
• Robert Spiera, MD
• Jessica Gordon, MD
• Lindsay Lally, MD
• Kimberly Lakin, MD
• David Fernandez, MD, PhD

Duke Scleroderma Center

40 Medicine Circle. Clinic 1J, Durham, NC 27710
919-613-2243
Edna Scarlett edna.scarlett@duke.edu

• Ankoor Shah, MD
• Pulmonologists: Duke Interstitial Lung Disease Clinic
• Pulmonary Hypertension: Terry Fortin, MD; Sudar Ragagopal MD
• Dermatology: Matilda Nicholas MD, PhD, Anne Marano, MD, Amanda Suggs, MD
• Stem Cell Transplant: Gwynn Long, MD; Tanya Helms PA-C

UNC Medical Center

100 Eastowne Dr, Chapel Hill, NC 27514
984-974-4191
Research Coordinator: Nicole Orzechowski, DO, RhMSUS, Nicole.Orzechowski@med.unc.edu

• Rheumatology:
  • Nicole M. Orzechowski, DO, RhMSUS
  • Ellen Amanda Snyder, MD
  • Abigail Gilbert, MD, MSCI
• Pulmonology:
  • Kunal Patel, MD, PhD
  • Christine Vigeland, MD
  • Jason Lobo, MD
  • Barbara LeVarge, MD
  • H. James Ford III, MD
• Cardiology:
  • Lisa Rose-Jones, MD
• Dermatology:
  • Donna Culton, MD,PhD
  • Luis Diaz, MD
• Gastroenterology:
  • Shifali Arora, MD
  • Cary Cotton, MD, MPH
  • Evan Dellon, MD, MPH

Cleveland Clinic

9500 Euclid Avenue Cleveland OH 44195
216-444-2273

• Soumya Chatterjee, ME
• Kristin Highland, MD (Pulmonologist)

University of Pennsylvania Rheumatology

5th Floor-White Building, 3400 Spruce Street Philadelphia PA 19104
215-662-4333
sallj@pennmedicine.upenn.edu

Large multidisciplinary collaborating physicians in Cardiology, Dermatology, Gastroenterology, Ophthalmology, Pulmonology, and other specialties.

• Chris Derk, MD
• Nikhil Jiwrajka, MD
• Peter Merkel, MD
• Nora Sandorfi, MD

UPMC & University of Pittsburgh Scleroderma Center – PEDIATRIC Scleroderma Center Children’s Hospital of Pittsburgh; Division Pediatric Rheumatology

4401 Penn Ave Pittsburgh PA 15224
412-692-7496
Pediatric Scleroderma Nurse: Vickie Vandergrift
Pediatric Clinical Research Coordinator: Haley Havrilla

• Kathryn Torok, MD – Rheumatology (pediatric, scleroderma expert)
• Franziska Rosser, MD – Pulmonary (pediatric, ILD expert)
• Vibha Sood, MD – Gastroenterology (pediatric, motility expert)
• Kirsten Rose-Felker, MD – Cardiology (pediatric, PAH expert)
• Paul Szabolcs, MD – Bone Marrow Transplant and Cellular Therapies (pediatric, expert in non-malignant SCT)
• Paulina Horvei, MD – Bone Marrow Transplant and Cellular Therapies (pediatric, expert in non-malignant SCT)
• Lauren Farver, PT, DPT – Physical therapy (pediatric, pulmonary rehab expertise)
• Devin Mcguire, PhD – Psychology (pediatric, expertise chronic pediatric illnesses)

Pediatric Craniofacial Scleroderma Center (En coup de sabre, Parry Romberg syndrome, linear scleroderma of the head):

• Kathryn Torok, MD – Rheumatology (pediatric, scleroderma expert)
• Michael Bykowski, MD, MS – Craniofacial Plastic Surgery
• Alene D’Alesio, DMD – Dentistry (pediatric)
• Lindsay Schuster, DMD, MS – Orthodontics (pediatric)
• Amgad Eldib, MD – ophthalmology (pediatric)
• Levi Shelton, MD – Neuroimmunology (pediatric)
• Deepa Rajan, MD – Neurogenetics (pediatric)
• Subramanian Subramanian, MD – Neurologic radiology (pediatric)

UPMC & University of Pittsburgh Scleroderma Center

3601 Fifth Avenue, Suite 2b Pittsburgh PA 15213
412-647-6700 (need to request specific physician) or sclerodermaappts@upmc.edu

• Robyn T. Domsic, MD MPH
• Robert Lafyatis, MD
• Cristina Padilla, MD
• Leigh Freno, CRNP

Medical University of South Carolina

96 Jonathan Lucas St., Ste 822 Charleston SC 29425
843-792-8041
Research Coordinator: Lori Ann Ueberroth

• Richard Silver, MD
• Faye Hant, DO, MSCR
• Celine Ward, MD
• Katherine Silver, MD, MSCR
• DeAnna Baker Frost, MD, PhD
• Cardiology: Ryan Tedford, MD
• Pulmonology:
  • Rachana Krishan, MD
  • Aravind Menon, MD
  • Denise Sese, MD
  • Rahul Argula, MD
• GI
  • Pooja Elias, MD
  • Caitlyn Green, MD
• Ophthalmology: Karen Fernandes, MD

Vanderbilt University Medical Center and Tennessee Valley Healthcare System Veterans Affairs The Vanderbilt Clinic

1301 Medical Center Drive, Nashville, TN 37232
Vanderbilt at One Hundred 719 Thompson Ln, Nashville, TN 37204

615-322-5000 (please request scheduling with Tracy Frech; needs referral from primary care or rheumatology for scheduling))
Sarah Wood (RESEARCH CONTACT ONLY) — sarah.wood@vumc.org

TVHS (Veterans Only) 1310 24th Ave S, TN 37204
615-327-4751

• Tracy Frech, MD
• Cardiology: Kathyrn Lindley, MD
• Cardiology: Tania Ruiz, MD
• GI: Rishi Naik, MD
• ILD: Erin Wilfong, MD; Justin Hewlitt, MD; Erica Ludkte, NP
• PH: Anna Hemnes, MD; Meredith Pugh, MD; Ivan Robbins, MD

University of Texas Health Science Center at Houston Rheumatology Clinic

6410 Fannin Street, Suite 450, Houston, TX 77030
713-486-3100
Research Coordinator: Patricia Gonzales

• Maureen D. Mayes, MD. MPH
• Zsuzsanna McMahan, MD. MHS
• Brian Skaug, MD, PhD
• Shervin Assassi, MD, MS
• Rodeo Abrencillo, MD
• Isabel Mira-Avendano, MD
• Salman Arain, MD

University of Washington Medical Center

1959 NE Pacific St,, Medical Specialties Clinic, UWMC-Montlake, Seattle, WA 98195
206-598-0440

• Mark Wener, MD
• Gregory Gardner, MD
• Jenna Thomason, MD
• Pulmonary, Interstitial Lung Disease: Ganesh Raghu, Lawrence Ho, Coralyn Sack, Chi Hung, Suha Kadura
• Pulmonary, Pulmonary Hypertension: Peter Leary,
• Gastroenterology, Motility: Margaret Eugenio, Jennifer Ray
• Dermatology: Andrea Kalus
• Hand Surgery: Jerry Huang

Scleroderma Clinic, Froedtert Memorial Hospital

9200 W. Wisconsin Avenue, Milwaukee, WI 53226
414-805-3666; 414-805-7390, option 4 (for urgent assessments)
Kiley Timler, Research Coordinator, ktimler@mcw.edu

• Mary Ellen Csuka, MD
• David Gazeley, MD
• Anam Qureshi, MD