National Scleroderma Foundation

Our Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.

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Join Us for a Foundation Event Upcoming Events
  • Central NC Scleroderma Support Group

    Virtual Event

    Guest: Dr. Ankoor Shah, Director, Duke Scleroderma Center Learn about the newest treatments and research available for scleroderma. Use this link to register and ask questions. https://us02web.zoom.us/meeting/register/RbpMm7_5RkORyZgmnVL8ug

  • Global Webinar: Advances in Scleroderma Research

    Zoom Meeting link available after registration
    Virtual Event

    Advances in Scleroderma Research - Global Webinar A series of virtual meetings open to the global community of scleroderma investigators. A CD57+ CD8 T Cell Subset Links Cytotoxic T Cell Function to Fibrotic Lung Disease in Systemic Sclerosis - Takanori Sasaki, MD, PhD, Keio University Arginase-1–Derived Ornithine Drives Collagen Synthesis in Lung Fibrosis - Mallar […]

  • St. Louis Support Group

    St. Louis Support Group
    Virtual Event

    The St. Louis Scleroderma Support Group serves the Heartland Chapter and meets virtually on the 3rd Saturday of odd-numbered months. For more information, please email support@scleroderma.org.

Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.