The National Scleroderma Foundation is excited to announce that we are realigning our chapters, allowing us to elevate our commitment to providing true coast-to-coat coverage for those affected by scleroderma and their caregivers. Supporting the journeys of all individuals who are affected by scleroderma has been and will continue to be our top priority. Broadening our reach ensures everyone within the United States affected by scleroderma has access to support, programs, and resources, and to help each individual find their best path.
As part of the organization’s five-year strategic plan, the board of directors elevated our commitment to providing true coast-to-coat coverage for those affected by scleroderma and their caregivers. Our foundation has been able to impact patients and caregivers for the last 25 years because of your dedication and hard work. We can’t wait to see the even greater impact you will have under this new format.
Our 13 chapters are:
- Florida & Puerto Rico Chapter (serving Florida & Puerto Rico)
- Heartland Chapter (serving Iowa, Nebraska, North Dakota, South Dakota, Kansas, and Missouri)
- Lower Great Lakes Chapter (serving Ohio, Illinois, Indiana, and Kentucky)
- Mid-Atlantic Chapter (serving District of Columbia, Maryland, Virginia, Delaware, South & Central New Jersey, Pennsylvania, and West Virginia)
- New England Chapter (serving Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont)
- Pacific Northwest Chapter (serving Washington, Oregon, Idaho, and Alaska)
- Rocky Mountain Chapter (serving Arizona, New Mexico, Colorado, Utah, Wyoming, and Montana)
- South Chapter (serving Alabama, Arkansas, Tennessee, Louisiana, and Mississippi)
- Southeast Chapter (serving North Carolina, South Carolina, and Georgia)
- Texoma Chapter(serving Texas and Oklahoma)
- Tri-State Chapter (serving Connecticut, New York, and Northern New Jersey)
- Upper Great Lakes Chapter (serving Michigan, Minnesota, and Wisconsin)
- West Coast Chapter (serving California, Nevada, and Hawaii) To find your chapter visit: https://scleroderma.org/find-your-local-chapter/
To find your chapter visit: https://scleroderma.org/find-your-local-chapter/
FAQ
The National Scleroderma Foundation’s Board of Directors committed to eliminating gaps in coverage across the U.S. as part of the organization’s 2022 five-year strategic plan. This realignment allows us to elevate the strength of our chapters to expand our reach so that we can meet our commitment to serve everyone affected by scleroderma.
This realignment will allow the Foundation to streamline resources and increase coverage and impact. We will finally be able to provide and ensure true coast-to-coast coverage and resources for those affected by scleroderma.
Our Foundation has organically grown over our 25-year history, and to ensure true coast-to-coast coverage, realignment is necessary. Our commitment is to ensure everyone impacted by scleroderma has access to our programs and services, we can accomplish this by adjusting the gaps in our current chapter model.
Our chapters are our greatest resource for supporting those impacted by scleroderma. The chapter realignment, will broaden the scleroderma community increasing reach to those with scleroderma. We believe that elevating our contribution and impact to those with scleroderma can begin with adapting our chapter model. We will continue to work together to provide research, education and support – and hopefully one day, a cure.
Our goal has been and always will be to do what is best for our members and the scleroderma community as a whole. We are excited to finally be able to bring the Foundation’s support and resources to all of those affected by scleroderma.
Chapter regions were established after examining different variables (population, member base, medical centers, volunteer base, history, etc.) with the goal to provide resources to as many patients and loved ones as possible.
We anticipate a period of adjustment as chapters acclimate to having new territories. The Foundation is prepared to provide resources to help make these transitions as smooth as possible. Chapter regions were established after examining different variables (population, member base, medical centers, volunteer base, history, etc.) with the goal to provide resources to as many people impacted by scleroderma.
The National Scleroderma Foundation’s Board of Directors committed to eliminating gaps in coverage across the U.S. as part of the organization’s 2022 three-year strategic plan. This realignment allows us to use the strength of our chapters to expand our reach ensuring that we are providing programs and services to all people living with scleroderma.
As a 100% donor-funded Foundation, we will continue to operate in a way that allows us to maximize our resources and impact. We have committed to having at least one paid staff member at each chapter, which will help further unite our organization and allow volunteers more time to support patients and caregivers.
Each chapter will hear directly from the national office in regard to allocated funding and resources. Unifying the organization allows us to gain efficiencies, consistency and elevate our contribution and impact to the scleroderma community.
Volunteers have always and will continue to be vital to the Foundation. The Foundation began and continues to thrive as a grassroots organization and that type of commitment and engagement continues today. We know that the greatest impact our volunteers make is their direct service to the scleroderma community and we hope that this realignment will continue to support their contribution to the scleroderma community.
A chapter leadership plan will be communicated soon. We have committed to having at least one paid staff member at each chapter, which will help further unite our organization and allow volunteers to support patients and caregivers.
Our goal has been and always will be to do what is best for our members and the scleroderma community as a whole. We are excited to finally be able to expand the Foundation’s support, resources, and reach to all of those affected by scleroderma. Each chapter will hear directly from the national office regarding allocated funding and resources.
Our goal has been and always will be to do what is best for our members and the scleroderma community as a whole. The Foundation began and continues today as a grassroots organization and we are unwavering in our commitment to this model. Each chapter will hear directly from the national office regarding allocated funding and resources. Expanding our reach allows us to gain efficiency, consistency and greater impact to those we serve.