Find a Treatment Center

Treatment Center Information

Find a Designated Scleroderma Research & Treatment Center

To ensure individuals with scleroderma are provided with knowledgeable resources about diagnosis, care, and research, the National Scleroderma Foundation’s Medical and Scientific Advisory Board established the following criteria under which medical institutions can be designated as a scleroderma research and treatment center.

  • Demonstrate expertise in the care of individuals with scleroderma
  • Conduct scleroderma research (clinical and or observational and/or laboratory-based)
  • Conduct educational activities about scleroderma and provide information about the advances in the care and treatment of individuals with scleroderma to health care professionals and the public.

The Foundation also recognizes the exceptional care provided by other centers and recognizes them as either Scleroderma Clinical Centers or Specialized Centers.

Choose the dropdown for the state you’re searching to locate an exceptional center near you. Please note: To make an appointment or inquire about ongoing studies, contact each center directly.

If you live in a geographic area that is not served by a Designated Scleroderma Research and Treatment Center, please contact the Foundation to find a rheumatologist with experience treating individuals with scleroderma, support@scleroderma.org, (800) 722-4673.

If you are interested in having your scleroderma center listed, please contact info@scleroderma.org.

TREATMENT CENTERS (listed by state)

Designated Scleroderma Research and Treatment Center Seal

University of Alabama at Birmingham

1720 2nd Avenue S, Birmingham, AL 35294
205-934-9999
https://www.uabmedicine.org/specialties/clinical-trials/

 

 

  • Amanda Alexander, MD
  • Tracy Luckhardt, MD (pulmonary)
  • Teja Kulkarni, MD (pulmonology)
  • Lauren Graham, MD (dermatology)
  • Jose Tallaj, MD (cardiology)
  • Fed Weber, MD (gastroenterology)

The University of Arizona
Interstitial Lung Disease Clinic at The University of Arizona Medical Center

3838 N Campbell Avenue
Building 2, Clinic F,
Tucson, AZ 85719
https://deptmedicine.arizona.edu/divisions/pulmonary-allergy-critical-care-and-sleep-medicine
To schedule an appointment: 520-694-4000

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic
Clinical trial/research point of contact: Heidi Erickson, 520-626-5287, herickso@email.arizona.edu

Rheumatology
C. Kent Kwoh, MD

Pulmonology
Sachin Chaudhary, MD
Arista Chand, MD
Bhupinder Natt, MD
Tammer Y El-Aini, MD
Kenneth Knox, MD
Mary Beth Jamison, NP

Gastroenterology
Avin Aggarwal, MD

Cardiology
Saad Kubba, MD

Designated Scleroderma Research and Treatment Center Seal

Mayo Clinic — Arizona

13400 E Shea Blvd Scottsdale AZ 85259
480-301-8368
New patient records fax: 480-301-9066
RN Ashley Baire – Scleroderma Nurse Program Coordinator. Phone: 480-301-8368

 

 

  • Vivek Nagaraja, MD, FACR (Rheumatology Division Chair and Scleroderma Program Director)
  • Michael Pham, MD (Co-Director, Scleroderma Program)
  • Ashley Baire, RN
  • Ana Zamora Martinez, MD Pulmonary/Interstitial Lung Disease
  • Lewis Wesselius, MD, Pulmonary/Interstitial Lung Disease
  • Robert W. Viggiano, MD, Pulmonary/Interstitial Lung Disease
  • Robert L. Scott MD, PhD, Cardiology/Pulmonary Hypertension
  • Karen L. Swanson, DO, Pulmonary/Pulmonary Hypertension
  • Marcelo F. Vela, MD, Gastroenterology/Esophageal
  • Allon Kahn, MD, Gastroenterology/Esophageal
  • Francisco C. Ramirez, MD, Gastroenterology/Esophageal
  • Tisha N. Lunsford, MD, Gastroenterology/Motility & Rectal Disorders
  • Lucinda A. Harris, MD, Gastroenterology/Motility & Rectal Disorders
  • Aaron R. Mangold, MD, Dermatology
  • Elika Hoss, MD, Dermatology Surgery and Cosmetic Procedures
  • Anthony A. Smith, MD, Hand Surgery/Plastic and Reconstructive Surgery

Designated Scleroderma Research and Treatment Center SealCedars-Sinai Medical Center
Kao Multispecialty Scleroderma Program

723 Alden Dr.
#250
Los Angeles, CA 90048
https://www.cedars-sinai.org/provider/francesco-boin-374782.html
To schedule an appointment: 310-423-6257

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Marianne Bernardo, 310-423-2422

Rheumatology
Francesco Boin

Pulmonology
Paul Noble
Tanzira Zaman
Yuri Matusov

Dermatology
Susan Rabizadeh

Gastroenterology
Ali Rezaie
Bianca Chang

Cardiology
Antoine Hage
Siddharth Singh

Other Clinicians
Ryu Yoshida
David Kulber, Hand Surgery

Designated Scleroderma Research and Treatment Center SealStanford University School of Medicine
Stanford Scleroderma Center of Excellence

450 Broadway
Redwood City, CA 94063
https://stanfordhealthcare.org/medical-clinics/autoimmune-skin-disease-clinic.html#about
To schedule an appointment: 650-723-6316, MSales@stanfordhealthcare.org

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Kathryn Jee, 650-736-4812, kjee@stanford.edu

Rheumatology
Lorinda Chung
Tamiko Katsumoto
Janice Lin
Yashaar Chaichian
Robert Fairchild

Pulmonology
Rishi Raj
Joshua Mooney
Kaissa de Boer
Tushar Desai
Roham Zamanian
Kristina Kudelko
Yon Sung
Vinicio de Jesus Perez
Matthew McCarra
Edda Spiekerkotter
Mark Nicolls

Dermatology
David Fiorentino
Jennifer Yeh
Matthew Lewis

Gastroenterology
John Clarke

Cardiology
Francois Haddad

Other Clinicians
James Chang, Plastics/Hand Surgery

Designated Scleroderma Research and Treatment Center SealUniversity of California, Los Angeles
UCLA Scleroderma Center

200 ULCA Medical Plaza
Suite 365
Los Angeles, CA 90095
https://www.uclahealth.org/medical-services/rheumatology/scleroderma
To schedule an appointment: 310-825-2448

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Nahal Ghanoongooi, 310-794-6213, NGhanoongooi@mednet.ucla.edu

Rheumatology
Elizabeth Volkmann
Arissa Young
Sam Good
Heather Bukiri
Suzanne Kafaja

Pulmonology
Sam Weigt
Augustine Chung
Jon Belperio
David Sayah
Rajan Saggar
Richard Channick
Richard Watson

Dermatology
Kyle Cheng

Gastroenterology
Terri Getzug,
Lisa Lin

Cardiology
Eric Yang

Other Clinicians
Nancee Jaffe, Nutrition

Loma Linda University Health Scleroderma Center of Excellence

11370 Anderson Street, Suite 3650
Loma Linda CA 92354
909-558-2860 or 909-558-2860

  • Vaneet K Sandhu, MD
  • Karina Torralba, MD
  • Christina Downey, MD
  • Heather Gillespie, MD
  • Niranjan Jeganathan, MD (pulmonary)
  • Dafne Moretta, MD (pulmonary)
  • Laren Tan,MD (pulmonary)
  • Nour Parsa, MD (gastroenterology)
  • Andrew Chang, MD (gastroenterology)
  • Penny Stack, OTD, OTR/L,CTL

Arthritis & Rheumatology Clinic — San Diego

4282 Genesee Ave, Suite 202 San Diego CA 92117
858-284-0070

  • Surabhi A. Khanna, MD

Designated Scleroderma Research and Treatment Center SealChildren’s Hospital of Colorado
Pediatric Rheumatology

13123 East 16th Avenue
Aurora, Co 80045
https://www.childrenscolorado.org/doctors-and-departments/departments/rheumatology/
To schedule an appointment: 720-777-6132

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: No
Clinical trials: Yes
Research areas: Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Katharine Moore, MD, 720-777-6132

Rheumatology
Robert Fuhlbrigge
Jennifer Soep
Clara Lin
Megan Curran
Jennifer Cooper
Joel Shirley
Jessica Bloom
KD Nowicki
Gabriel Tarshish
Kentaro Yomogida 

Pulmonology
Robin Deterding

Dermatology
Anna Bruckner
Lori Prok

Gastroenterology
Edwin Liu

Cardiology
Dunbar Ivy

Other Clinicians
Rachel Workman, Integrative Medicine
Bradley Dixon, Nephrology

 

Designated Scleroderma Research and Treatment Center SealNational Jewish Health
Scleroderma Treatment & Research Program

1400 Jackson Street
Denver, Co 80206
https://www.nationaljewish.org/directory/scleroderma-program
To schedule an appointment: 1-877-255-5654 [1-8770-CALL-NJH]

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Cindy Wainscoat, 303-398-1259, wainscoatc@njhealthj.org

Rheumatology
Mehrnaz Maleki Fischbach, MD, FACR
Samrika Sapkota, MBBS/MD

Pulmonology
Jeffery Swigris, DO
Rebecca Keith, MD
Zulma Yunt, MD
Michael Mohning, MD
Patricia George, MD
Tim Lahm, MD,
Kevin Rurak, MD
Adriel Malave, MD

Dermatology
Affiliated with University of Colorado Dermatology

Gastroenterology
Arash Babaei, MD

Cardiology
Darlene Kim, MD
Andrew Freeman, MD

Other Clinicians
Metabolic Health Clinic, Bone Health Clinic, Sleep Clinic, Neurology/Neuromuscular, Nutrition Clinic

Designated Scleroderma Research and Treatment Center SealUniversity of Colorado
Center for Lungs and Breathing/Scleroderma Clinic

1635 Aurora Ct. (7th Floor)
Aurora, Co 80045
https://medschool.cuanschutz.edu/rheumatology
To schedule an appointment: 720-848-0748

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: RAstudies@cuanschutz.edu; ildresearch@cuanschutz.edu

Rheumatology
Melissa Griffith, MD
Kristen Demoruelle MD, PhD
Jason Kolfenbach, MD

Pulmonology
Joyce Lee, MD
Bridget Graney, MD
Yael Aschner, MD
Fred McLafferty, MD
Jenny Williams, PA-C

Dermatology
Margaret Boyle, MD

Gastroenterology
Kelli Delay, MD
Paul Menard-Katcher, MD

Designated Scleroderma Research and Treatment Center Seal

Yale Scleroderma Program

300 Cedar Street S470 New Haven CT 06519
203-287 6200

  • Monique Hinchcliff MD MS
  • Ian Odell MD (Dermatology)

 

UCONN Health Division of Rheumatology

135 Dowling Way, Farmington, CT 06030
860-679-2160

  • Mallory Edrich BSN,RN | Research Nurse, Office: tel 860.679.4219 | Fax: 860.679.1281
  • Santhanam Lakshminarayanan, MD
  • Dr. Raymond Foley (Pulmonary Hypertension Center)

Designated Scleroderma Research and Treatment Center Seal

Georgetown University Scleroderma Center

3800 Reservoir Road, PHC 3004. Washington DC 20007
202-444-6215
Research Coordinator: Destiny Barksdale 202-444-6206

  • Virginia Steen, MD
  • Patients are referred to appropriate consultants within the Medstar Georgetown University Hospital Center including Dr. Christine Fleury (pulmonary) Dr. Angelica Nocerino, (gastroenterology) and Dr. Farooq H. Sheikh.

Designated Scleroderma Research and Treatment Center SealMayo Clinic
Division of Rheumatology, Scleroderma Clinic

4500 San Pablo Road
Jacksonville, FL 32224
https://www.mayoclinic.org/
To schedule an appointment: 904-953-2000

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic
Clinical trial/research point of contact: Andy Abril, MD, 904-953-2101, abril.andy@mayo.edu

Rheumatology
Andy Abril
Vikas Majithia
Florentina Berianu

Pulmonology
Hassan Baig
Augustine Lee
John Moss
Charles Burger

Dermatology
Jason Sluzevich

Gastroenterology
Maria Vasquez
Kenneth DeVault
Dawn Francis

Other Clinicians
Ernesto Ayala, Hematology

Emory University
Emory University Scleroderma Center

1365 Clifton Road, NE
Clinic A 3rd Floor
Atlanta, GA, 30322
https://med.emory.edu/departments/medicine/divisions/rheumatology/index.html
To schedule an appointment: 404-778-4366

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic

Rheumatology
Katina Tsagaris, DO, MPH
Jennifer Brandt, MD, MPH

Pulmonology
Dr.Srihari Veeraghavan
Dr. Lucian Marts
Dr. Michah Fisher
Dr. Aaron Trammell

Dermatology
Dr. Justin Cheeley

Gastroenterology
Dr. Anand Jain
Dr. Dariush Shahsavari

Other Clinicians
Dr. Paul Ghareeb, Orthopedics/Hand

Designated Scleroderma Research and Treatment Center SealUniversity of Chicago
University of Chicago Scleroderma Program

5758 S. Maryland Ave.
RM DCAM 4C
Chicago, IL 60637
https://www.uchicagomedicine.org/conditions-services/rheumatology/scleroderma-program
To schedule an appointment: 773-702-6119

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic
Clinical trial/research point of contact: Irshad, Yusra, Yusra.Irshad@bsd.uchicago.edu

Rheumatology
Michael Macklin, MD, PharmD

Pulmonology
Ayodeji Adegunsoye, MD,
Mary E. Strek, MD,
Cathryn Lee, MD

Dermatology
Mark Hoffman, MD

Gastroenterology
Dejan Micic, MD

Cardiology
Stanley Swat, MD

Designated Scleroderma Research and Treatment Center Seal

Northwestern University Scleroderma Program

675 N. St. Clair St., Ste. 14-100, Chicago, IL 60611
312-695-8628
Kathleen Aren (kathleen.aren@northwestern.edu) and Alex Soriano (alexandra.soriano@northwestern.edu)

 

 

  • Carrie Richardson, MD
  • Duncan Moore, MD” “Gastroenterology – Darren Brenner, Ikuo Hirano
  • Pulmonology – Jane Dematte, Brad Bemiss, Anthony Esposito, Michael Cuttica, Ruben Mylvaganam
  • Cardiology – Sanjiv Shah, Ben Freed
  • Dermatology – Jennifer Shastry, Cuong Nguyen, Joshua Prenner

Designated Scleroderma Research and Treatment Center Seal

New Orleans Scleroderma and Sarcoidosis Research Center

2000 Canal Street, New Orleans, LA 70112
504-822-6653 phone
504-822-6633 fax
Research Tel: 504-336-2667

  • Lesley Ann Saketkoo,MD
  • Matthew Lammi, pulmonary
  • Amita Krishnan, pulmonary
  • Ben deBoisblanc, pulmonary
  • Murtuza Ali, cardiology
  • Catherine Hudson, gastroenterology
  • Research Coordinator: Dylan Touchet
  • Regulatory Director: Reggie Mister”

Designated Scleroderma Research and Treatment Center SealJohns Hopkins University
The Johns Hopkins Scleroderma Center

5501 Hopkins Bayview Circle
Baltimore, MD 21224
https://www.hopkinsscleroderma.org/
To schedule an appointment: 410-550-7715

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Gwen Leatherman, 410-550-8582, gleathe1@jh.edu

Rheumatology
Fredrick Wigley
Laura Hummers
Ami Shah
Julie Paik
Christopher Mecoli
Rachel Wallwork
Timothy Kaniecki

Pulmonology
Matthew Lammi
Stephen Mathai
Paul Hassoun
Todd Kolb
Catherine Simpson
Aparna Balsubramanian,

Gastroenterology
Tsion Abdi

Cardiology
Monica Mukherjee
Stephen Hsu

Other Clinicians
Scott Lifchez, Hand Surgery

Designated Scleroderma Research and Treatment Center SealBoston University
Boston Medical Center – Scleroderma Clinic

725 Albany Street
Shapiro Center, Suite 8 A
Boston, MA 02118
https://www.bmc.org/scleroderma
To schedule an appointment: 617-358-6171, alice.anderson@mbc.org

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: No
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Kimberly Finch, 617-358-6785, kimtobin@bu.edu

Rheumatology
Andreea Bujor
Marcin Trojanowski
Michael York

Pulmonology
Finn Hawkins
Konstantinos Alyssandratos
Hector Marquez
Elizabeth Klings

Dermatology
Cristina Lam

Cardiology
David Pimentel

Designated Scleroderma Research and Treatment Center Seal

Massachusetts General Hospital – MGH Boston – Scleroderma Program

55 Fruit St, Yawkey 4B, Boston, MA 02114
617-726-7938
https://www.massgeneral.org/medicine/rheumatology/treatments-and-services/scleroderma
Appointments by referral only. Please call 617-726-7938 for more information.

 

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: 617-643-6694, scleroderma@mgb.org

Rheumatology
Flavia Castelino, MD
Marcy Bolster, MD
Sara Schoenfeld, MD

Pulmonology
Robert Hallowell, MD
Sydney Montesi, MD
Barry Shea, MD
Fiona Gibbons, MD
Alison Witkin, MD
Josanna Rodriguez-Lopez, MD

Dermatology:
Janice Tiao, MD

Gastroenterology:
Vlaicu Botoman, MD

Designated Scleroderma Research and Treatment Center SealUniversity of Michigan
Michigan Scleroderma Program

300 North Ingalls Street
SPC 5422
Ann Arbor, MI 48109
https://www.uofmhealth.org/conditions-treatments/rheumatology/scleroderma-program
To schedule an appointment: 888-229-3065

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Neda Kortam, ssc-coordinator@umich.edu

Rheumatology
Dinesh Khanna
John Varga
Erica Mulcaire-Jones
Carleigh Zahn

Pulmonology
David O’Dwyer
Justin Oldham
Janelle Pugashetti

Dermatology
Johan Gudjonsson

Cardiology
Val McLaughlin

Other Clinicians
Susan Murphy
Yen Chen

Designated Scleroderma Research and Treatment Center SealMayo Clinic Rochester

200 First Street SW
Rochester, MN, 55905
https://www.mayo.edu/research/departments-divisions/rheumatology/overview
To schedule an appointment: 507-538-3270 or https://www.mayoclinic.org/appointments

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Rheumatology Research Unit, rheumresunit@mayo.edu

Rheumatology
Dr. Ashima Makol, MD
Dr. Elena Joerns, MD
Dr. Thomas Osborn, MD
Dr. Floranne Ernste, MD
Dr. Alicia Hinze, MD
Andrea Pauly, APRN, CNP
Jessica Baker, APRN, CNP

Pulmonology
Dr. Jay Ryu, MD
Dr. Teng Moua, MD
Dr. Misbah Baqir, MD
Dr. Sanjay Kalra, MD
Dr. John Joerns, MD

Dermatology
Dr. David Wetter, MD
Dr. Lisa Drage, MD
Dr. Mark Davis, MD
Dr. Michael Camilleri, MD

Cardiology
Dr. Robert Frantz, MD
Dr. Hector Cajigas, MD
Dr. Hilary DuBrock, MD
Dr. Garvan Kane, MD
Dr. Michael J. Krowka, MD

Other Clinicians
Dr. Amir Orandi, MD – Pediatric Rheumatology
Dr. Matthew Basiaga, MD – Pediatric Rheumatology
Dr. Dawn Davis, MD – Pediatric Dermatology
Dr. Megha Tollefson, MD – Pediatric Dermatology

Designated Scleroderma Research and Treatment Center SealUniversity of Minnesota Scleroderma Clinic
University of Minnesota

909 Fulton Street SE
Minneapolis, MN, 55455
www.med.umn.edu/dom/divisions/rheumatic-and-autoimmune-diseases
To schedule an appointment: 651-326-7990

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Katherine Wu, 612-624-9105; wuxx1320@umn.edu

Rheumatology
Dr. Jerry Molitor
Dr. Erik Peterson
Dr. Marta Michalska-Smith
Dr. Aparna Das
Dr. Sumi Patel
Dr. Nada Alrifai

Pulmonology
Dr. Hyun Joo Kim
Dr. David Perlman
Dr. Aahd Kubbara

Dermatology
Dr. David Pearson
Dr. Eamonn Maher

Gastroenterology
Dr. Joshua Sloan

Cardiology
Dr. Mark Pritzker
Dr. Thennapan Thennapan
Dr. Sasha Prisco
Robyn Kunkel, PA

Other Clinicians
Dr. Thomas Suszynski – Hand Surgeon

Designated Scleroderma Research and Treatment Center SealRutgers Health – Robert Wood Johnson Medical School
Scleroderma Program

125 Paterson Street
New Brunswick, NJ 08903
https://patientcare.rutgershealth.org/services/rheumatology/scleroderma-program
To schedule an appointment: 732-235-7217

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic
Clinical trial/research point of contact: Fei Chen, RN, 732-235-5965, https://njacts.rbhs.rutgers.edu/clinical-trials-office/resources/clinical-research-units/clinical-research-center/

Rheumatology
Vivien Hsu
David Roofeh

Designated Scleroderma Research and Treatment Center SealJoseph M. Sanzari Children’s Hospital
Hackensack University Medical Center

30 Prospect Avenue
WFAN 3rd Floor
Hackensack, NJ 07601
https://www.hackensackmeridianhealth.org/en/locations/hmh-pediatric-rheumatology-hackensack
To schedule an appointment: 551-996-5306

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: No
Research areas: Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Mary Ellen Riordan, RN, 551-996-8126, maryellen.riordan@hmhn.org

Rheumatology
Suzanne Li
Sivia Lapidus
A. Carmela Gironella
Suhas Ganguli

Pulmonology
Donna Lee
Gurpreet Phull

Dermatology
Rachel Rosenstein
Helen Shin
Emily Berger
Julie Schaffer

Gastroenterology
Elaine Moustafellos
Payal Makadia

Cardiology
George Kippel
Gabriel Ramos
Meghan Tozzi

Other Clinicians
Helio Pedro, Genetics
Melissa Liebling, Radiology
Michael McGuire, Radiology
Aaron Hodes, Radiology
Carly Rothman, Physiatry
Michelle Sirak Physiatry
Nicole Falcone, Physical Therapy
Moriah Anderson, Physical Therapy

Designated Scleroderma Research and Treatment Center SealAlbany Medical College
Albany Medical Scleroderma Center

6 Medical Park Drive
Suite 203
Malta, NY 12020
https://amc.edu
To schedule an appointment: 518-264-1200

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic
Clinical trial/research point of contact: Lee Shapiro, MD, 518-264-1200, Shapirl@amc.edu

Rheumatology
Lee Shapiro, MD
Michael Allen, MD

Pulmonology
Boris Medarov, ND
Ariel Jaitovich, MD

Gastroenterology
Micheal Tadros, ND

Other Clinicians
Swati Mehta, MD, Nephrology

Designated Scleroderma Research and Treatment Center SealHospital for Special Surgery
Scleroderma, Vasculitis & Myositis Center

535 East 70 Street
New York, NY 10021
https://www.hss.edu/scleroderma-vasculitis-center.asp
To schedule an appointment: 212-774-2048

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: No
Clinical trials: Yes
Research areas: Translational
Clinical trial/research point of contact: Elizabeth Soto-Cardon, 212-774-2048, stoe@hss.edu

Rheumatology
Robert Spiera
Jessica Gordon
Kimberly Lakin

Designated Scleroderma Research and Treatment Center Seal

Columbia University
Columbia University Medical Center/New York-Presbyterian Hospital Scleroderma Program

161 Fort Washington Ave.
HIP 2
New York, NY, 10032
https://www.columbiadoctors.org/specialties/rheumatology/scleroderma-center
To schedule an appointment: 212-305-4308 or RheumAdmins@cumc.columbia.edu

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: No
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Claudia Salazar, 212-305-5686, cs4559@cumc.columbia.edu

Rheumatology
Elana J. Bernstein, MD, MSC
Yiming Luo, MD, MHS

Pulmonology
Christina Eckhardt, MD
Claire McGroder, MD
David Zhang, MD

Dermatology
Stephanie Gallitano, MD

Gastroenterology
Will Blackett, MD
David Katzka, MD
Sydney Pomenti, MD

Cardiology
Jennifer Haythe, MD
Gregg Rosner, MD

Other Clinicians
Markus Mapara, MD, PhD – Stem Cell Transplantation

The Scleroderma and Raynaud’s Treatment Center

865 Northern Blvd, Suite 302, Great Neck, NY 11201
516-708-2550

  • Himanshu Vashistha
  • Sonali Narain, MD N/A

Designated Scleroderma Research and Treatment Center Seal

Duke Scleroderma Center

40 Medicine Circle. Clinic 1J, Durham, NC 27710
919-613-2243
Edna Scarlett edna.scarlett@duke.edu

  • Ankoor Shah, MD
  • Pulmonologists: Duke Interstitial Lung Disease Clinic
  • Pulmonary Hypertension: Terry Fortin, MD; Sudar Ragagopal MD
  • Dermatology: Matilda Nicholas MD, PhD, Anne Marano, MD, Amanda Suggs, MD
  • Stem Cell Transplant: Gwynn Long, MD; Tanya Helms PA-C

Designated Scleroderma Research and Treatment Center Seal

UNC Medical Center

100 Eastowne Dr, Chapel Hill, NC 27514
984-974-4191
Research Coordinator: Nicole Orzechowski, DO, RhMSUS, Nicole.Orzechowski@med.unc.edu

  • Rheumatology:
    • Nicole M. Orzechowski, DO, RhMSUS
    • Ellen Amanda Snyder, MD
    • Abigail Gilbert, MD, MSCI
  • Pulmonology:
    • Kunal Patel, MD, PhD
    • Christine Vigeland, MD
    • Jason Lobo, MD
    • Barbara LeVarge, MD
    • H. James Ford III, MD
  • Cardiology:
    • Lisa Rose-Jones, MD
  • Dermatology:
    • Donna Culton, MD,PhD
    • Luis Diaz, MD
  • Gastroenterology:
    • Shifali Arora, MD
    • Cary Cotton, MD, MPH
    • Evan Dellon, MD, MPH

Designated Scleroderma Research and Treatment Center SealCleveland Clinic
Cleveland Clinic Scleroderma Center

9500 Euclid Ave.
Desk A50
Cleveland, OH 44195
https://my.clevelandclinic.org/services/scleroderma-treatment
To schedule an appointment: 216-444-2273

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Kristin Highland, 216-445-5429, highlandk@ccf.org

Rheumatology
Soumya Chatterjee, MD, MS
Kristin Highland, MD

Pulmonology
Kristin Highland, MD
Sameep Sehgal, MD
Joseph Parambil, MD

Dermatology
Anthony Fernandez, MD, PhD
Melissa Piliang, MD
Christine Warren, MD

Gastroenterology
Donald Kirby, MD
Scott Gabbard, MD
Prashanthi Thota, MD
Shirley Paski, MD
Michael Cline, DO

Cardiology
Michael Faulx, MD
Eileen Hsich, MD
Maria Mountis, DO
Heba Wassif, MD, MPH

Other Clinicians
Andrew Zeft, MD, Pediatrics
Elizabeth Brooks, MD, PhD, Pediatrics
Sirada Panupattanapong, MD, Pediatrics
Jeffrey Goshe, MD, Ophthalmology
Sunil Srivastava, MD, Ophthalmology
Lisa Lystad, MD, Ophthalmology
Raymond Isakov, MD, Plastics
Joseph Styron, MD, PhD, Hand Orthopedics
Todd Coy, DMD, Dentistry

Designated Scleroderma Research and Treatment Center SealThomas Jefferson University
Jefferson Scleroderma Center

1101 Chesnut St 11th Floor
Philadelphia, PA 19107
To schedule an appointment: 215-955-8430; Please mention “Scleroderma new patient visit with Dr Mendoza should be mentioned”

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Translational; Clinical/Epidemiologic
Clinical trial/research point of contact: Marsha Simmons, 215 955-8405, marsha.simmons@jefferson.edu

Rheumatology
Fabian Mendoza, MD

Pulmonology
Michael Scharf, MD (Pulmonary Hypertension)
Gautam George, MD
Ross Summer, MD

Gastroenterology
Christopher Adkins, MD (Esophageal Dysmotility)

Cardiology
Sofia C Masri, MD (Heart Failure)

Designated Scleroderma Research and Treatment Center SealUPMC Children’s Hospital of Pittsburgh
Juvenile Systemic Scleroderma Center

4401 Penn Avenue
Pittsburgh, PA 15224
https://www.chp.edu/our-services/rheumatology/conditions/juvenile-systemic-scleroderma
To schedule an appointment: 412-692-7496, scleroderma@chp.edu

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Haley Havrilla, 412-692-6478, scleroderma@chp.edu

Rheumatology
Kathryn Torok, MD

Pulmonology
Franziska Rosser, MD

Gastroenterology
Vibha Sood, MD

Cardiology
Kirsten Rose-Felker, MD

Other Clinicians
Paul Szabolcs, MD, Bone Marrow Transplant and Cellular Therapies
Paulina Horvei, MD Bone Marrow Transplant and Cellular Therapies
Alyssa Zuziak, DO, Physical Medicine and Rehabilitation,
Lauren Farver, MD, Physical Therapy,
Wendy Koster MS, ORT/L, Occupational Therapy,
Devin Mcguire, PhD, Psychology

Designated Scleroderma Research and Treatment Center SealUPMC Children’s Hospital of Pittsburgh
Pediatric Craniofacial Scleroderma Center

4401 Penn Avenue
Pittsburgh, PA 15224
https://www.chp.edu/our-services/rheumatology/conditions/pediatric-scleroderma
To schedule an appointment: 412-692-7496, scleroderma@chp.edu

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Haley Havrilla, 412-692-6478, scleroderma@chp.edu

Rheumatology
Kathryn Torok, MD

Other Clinicians
Michael Bykowski, MD Pediatric Craniofacial Plastic Surgery
Alene D’Alesio, DMD, Pediatric Dentistry
Lindsay Schuster, DMD, MS, Pediatric Orthodontics
Amgad Eldib, MD, Pediatric Ophthalmology
Levi Shelton, MD, Pediatric Neuroimmunology

Designated Scleroderma Research and Treatment Center Seal

UPMC & University of Pittsburgh
Scleroderma Center

3601 Fifth Avenue, Suite 2b Pittsburgh PA 15213
412-647-6700 (need to request specific physician) or sclerodermaappts@upmc.edu

 

 

Rheumatology
Robyn T. Domsic, MD, MPH
Robert Lafyatis, MD
Cristina Padilla, MD
Leigh Freno, CRNP

Pulmonology
Eleanor Valenzi, MD
Daniel Sullivan, MD
Belinda Rivera-Lebron, MD
Michael Risbano, MD

Cardiology
Steven Chan, MD
Brittany Palmer, MD

Gastroenterology
David Levinthal, MD
Michael Kingsley, MD

Other Clinicians
Christopher Passero, MD, Nephrology

Designated Scleroderma Research and Treatment Center Seal

University of Pennsylvania
Penn Scleroderma Center

3400 Spruce Street
South Pavilion, First Floor
Philadelphia PA 19104
https://www.pennmedicine.org/for-patients-and-visitors/find-a-program-or-service/rheumatology/scleroderma
215-662-2454

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic
Clinical trial/research point of contact: Lauren Baker, rheumatologyresearch@uphs.upenn.edu

Rheumatology
Peter A. Merkel, MD, MPH
Nora Sandorfi, MD
Chris T. Derk, MD, MS
Naomi A. Amudala, CRNP, MSN

Pulmonologists
Maria M. Crespo, MD
Shweta Sood, MD, MS
Maryl Kreider, MD, MSCE
Namrata B. Patel, MD

 

Designated Scleroderma Research and Treatment Center SealMedical University of South Carolina
MUSC Division of Rheumatology and Immunology

96 Jonathan Lucas Street
CSB 822
Charleston, SC, 29425
https://medicine.musc.edu/departments/dom/divisions/rheumatology-and-immunology
To schedule an appointment: 843-876-0615

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Miranda Irvin, 843-792-8613, sclerodermaresearch@musc.edu

Rheumatology
Richard M. Silver, MD
Deanna Baker Frost, MD, Ph.D.
Faye Hant, DO, MSCR
Jennifer Schmidt, MD
Katherine Silver, MD
Celine Ward, MD

Pulmonology
Aravind Menon, MD
Rahul Argula, MD
J. Terrill Huggins, MD
Rachana Krishna, MD
Denise Sese, MD

Dermatology
Kimberly Hashemi, MD

Gastroenterology
Puja S. Elias, MD, MPH
Caitlin H. Green, MD

Cardiology
Ryan J. Tedford, MD, FACC, FAHA

Other Clinicians
Karen Brian Fernandez, MD, Ophthalmology
Katherine Silver, MD, Pediatric Scleroderma

Designated Scleroderma Research and Treatment Center SealVanderbilt University Medical Center
Vanderbilt Systemic Sclerosis Program

The Vanderbilt Clinic
1301 Medical Center Drive
Nashville, TN 37232
https://medicine.vumc.org/divisions/rheumatology-immunology/research/centers-labs
To schedule an appointment: 615-322-2386

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Sarah Wood, inflammatoryarthritis@vumc.org

Rheumatology
Tracy Frech

Pulmonology
Katie McPherson
Justin Hewlitt
Joao de Andrade
Anna Hemnes
Meredith Pugh
Ivan Robbins

Dermatology
Eric Tkaczyk
Jami Miller
Dustin Taylor

Gastroenterology
Rishi Naik

Cardiology
Tania Ruiz
Kathyrn Lindley
Evan Brittain

Other Clinicians
Brad Hill, Plastic Surgery
Aaron Aday, Vascular Medicine

Designated Scleroderma Research and Treatment Center SealUniversity of Texas -Health (UT Health)
Scleroderma Clinic and Research Center

6410 Fannin Street
Suite 450
Houston, TX 77030
https://med.uth.edu/internalmedicine/rheumatology-and-clinical-immunogenetics/scleroderma-program
To schedule an appointment: 713-486-3100

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Patricia Gonzales, LVN Research Nurse, 713-500-7118, Patricia.Gonzales@uth.tmc.edu

Rheumatology
Maureen Mayes, MD, MPH
Shervin Assassi, MD
Zsuzsanna McMahan
Brian Skaug

Pulmonology
Rodeo Abrencillo

Cardiology
Salman Arain

Designated Scleroderma Research and Treatment Center SealUniversity of Texas Southwestern
UT Southwestern Medical Center: Dermatology

5939 Harry Hines Blvd.
4th Floor, Suite 100
Dallas, TX 75390
https://utswmed.org/locations/pob2/dermatology-clinic/
To schedule an appointment: 214 645-8968, Aleuna.lee@utsouthwestern.edu

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Aleuna Lee, 214-645-8968, Aleuna.lee@utsouthwestern.edu

Rheumatology
Dr. Elizabeth Solow
Dr. Nuha Said
Dr. James Roberts
Dr. Bonnie Bermas (pregnancy in rheumatology)

Pulmonology
 Dr. Kelly Chin (PAH),
Dr. Chad Newton (ILD),
Dr. Trushil Shah (PAH),
Dr. Craig Glazer (ILD)
Dr. John Fitzgerald (ILD)
Dr. Corey Kershaw (ILD)
Dr. Margaret Kyrepos (ILD)

Dermatology
Heidi Jacobe, MD, MSCS

Gastroenterology
Dr. Sravanya Gavini (GI motility)

Scleroderma Center at BUMC
Baylor University Medical Center

3600 Gaston Avenue
Wadley Tower Suite 1055
Dallas, TX 75246
To schedule an appointment: 469-800-8049 (Rheumatology); 212-820-6856 (Center for Advanced Heart & Lung Disease); Samera.Vaseer@bswhealth.org

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Clinical/Epidemiologic; Translational
Clinical trial/research point of contact: Felicia Padilla (214-820-1771), Brianna Kamrwan (214-820-1685), Mariana Hurutado-Rodriguez

Rheumatology
Samera Vaseer

Pulmonology
Susan Mathai
Yolanda Mageto
Yosafe Wakwaya
Ala AlKhatib
Jirru Ermias

Gastroenterology
Anh Nguyen
Stuart Spechler
Chanakyaram Reddy
Vani Konda

Cariology
Farah Al-Saffar, MD

Other Clinicians
Chtan Naik (Pulmonary Hypertension)
Mohammad Mogri (Pulmonary Hypertension)
Bhavna Sharma (Pulmonary Hypertension)

Pulmonary Fibrosis Center
Virginia Commonwealth University

Virginia Commonwealth University Health Center
1001 East Leigh Street
Richmond, VA 23298
https://www.vcuhealth.org/services/pulmonology-and-critical-care-medicine/our-services/interstitial-lung-disease/
To schedule an appointment: 804-628-7155 or Sarah.Goodwin@vcuhealth.org

Accepting new patients: Yes
Dedicated clinical time for scleroderma patients: Yes
Clinical trials: Yes
Research areas: Basic/Laboratory; Translational
Clinical trial/research point of contact: Robin Toft, Robin.Toft@vcuhealth.org, 804-628-1941

Rheumatology
Rabia Gill

Pulmonology
Apostolos Perelas

Gastroenterology
Milan Patel

Other Clinicians
Jordan Shanley, NP

Designated Scleroderma Research and Treatment Center Seal

University of Washington Medical Center

1959 NE Pacific St,, Medical Specialties Clinic, UWMC-Montlake, Seattle, WA 98195
206-598-0440

  • Mark Wener, MD
  • Gregory Gardner, MD
  • Jenna Thomason, MD
  • Pulmonary, Interstitial Lung Disease: Ganesh Raghu, Lawrence Ho, Coralyn Sack, Chi Hung, Suha Kadura
  • Pulmonary, Pulmonary Hypertension: Peter Leary,
  • Gastroenterology, Motility: Margaret Eugenio, Jennifer Ray
  • Dermatology: Andrea Kalus
  • Hand Surgery: Jerry Huang

Scleroderma Clinic, Froedtert Memorial Hospital

9200 W. Wisconsin Avenue, Milwaukee, WI 53226
414-805-3666; 414-805-7390, option 4 (for urgent assessments)
Kiley Timler, Research Coordinator, ktimler@mcw.edu

  • Mary Ellen Csuka, MD
  • David Gazeley, MD
  • Anam Qureshi, MD