To register & for more information, please email rmchapter@scleroderma.org
35 events found.
National Scleroderma Foundation Events
Events
Calendar of Events
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The Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of the month at 3:00 p.m. ET. Please click here to register in advance. A meeting link will be shared after registration. For more information, please email PAH@scleroderma.org. 
The new Teen Support Group meets at 7:30 p.m. ET on the first Tuesday of the month. To participate, please complete this interest form. Elle Hurley, manager of support programs, will contact you with more information. Email teenSG@scleroderma.org for more information. |
4 events,
If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will be on the third Tuesday of every month from 7:00-8:30 p.m. ET. Click here to register in advance for this meeting. After registering, you will receive a […] 
This support group is in-person. For more information, please email support@scleroderma.org 
To register & for more information, please email djames@scleroderma.org 
To register & for more information, please email floridaprchapter@scleroderma.org |
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To register & for more information, please email rmchapter@scleroderma.org 
To register & for more information, please email floridaprchapter@scleroderma.org |
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The Boardman/Youngstown Support Group holds hybrid meetings on the first Monday of the month. The meetings are on Zoom and at Davidson's Restaurant on Canfield Rd. in Canfield. To register & for more information, please email lglchapter@scleroderma.org. 
Just like each of our lives are different, so are our lived experiences with scleroderma. One thing we all seem to have in common is that at some point in this journey we have found the need to advocate for ourselves, whether it has been with family, friends, in our jobs or in a medical […] |
1 event,
Join our parent support group and connect with other parents who understand the challenges of scleroderma. Click here to register in advance. A meeting link will be shared after registration. For more information, please email support@scleroderma.org. |
3 events,
To register & for more information, please email NEchapter@scleroderma.org
Virtual Event
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Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group will help navigate these questions and support newly diagnosed individuals. Click here to register in advance. A meeting […] |
2 events,
This group will meet virtually on the 2nd Thursday of each month. CLICK HERE TO REGISTER 
To register & for more information, please email uglchapter@scleroderma.org |
1 event,
Virtual Event
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Virtual Event
Advances in Scleroderma Research – Global Webinar is a series of virtual meetings open to the global community of scleroderma researchers. This virtual forum provides a venue to bring together the global scleroderma research community to hear the latest breakthroughs from the field. Each session will feature recent discoveries and high impact publications related to all […] |
13 events,
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Join us for Stepping Out to Cure Scleroderma- Westfield, MA on Saturday, September 21. This year's walk will be held at Westfield Bank Pavilion (B) at Stanley Park in Westfield. When: Saturday, September 21 Where: Stanley Park, Westfield Bank Pavilion (B), 400 Western Ave., Westfield, MA 01085 Registration: 9:00 a.m. 5K and Walk […] 
To register & for more information, please email pcollins@scleroderma.org
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Join us for Stepping Out to Cure Scleroderma- D.C.-MD-VA on Saturday, June 12 at Franconia Park in Alexandria, VA. When: Saturday, September 21, 2026 Where: Franconia Park - Leonadus K. Plenty Amphitheater, 6601 […]
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Join us for a fantastic, fun family focused event. We are raising money to help find a cure for Scleroderma and need your help! There is even a Nature Play Area for kids, Raffle Baskets and Auction Items for kids and adults. Raffle Tickets will be on sale the day of the walk, winners will […] 
The Denver Mile High Support Group is hybrid and meets on the second Saturday of every month. Starting in January and through April, the meetings will only be held virtually. To register & for more information, please email rmchapter@scleroderma.org 
To register & for more information, please email cfidalgo@scleroderma.org
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Join us for Stepping Out to Cure Scleroderma - Billings, MT on Saturday, September 12, 2026. As a father of someone with scleroderma, it gives me a tremendous amount of joy to […] 
For more information, please email floridaprchapter@scleroderma.org Use this link to register in advance: https://us02web.zoom.us/meeting/register/qWft8jCtQk6HUjt_qnfyrQ#/ 
For more information, please email floridaprchapter@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom This support group only meets during the odd months of the year. 
Segundo sábado del mes a las 11:00 a.m. ET 📩 Tras registrarse, recibirá un correo de confirmación con el enlace para unirse al evento. Envíe un correo electrónico a support@scleroderma.org para obtener más información. 
To register & for more information, please email sechapter@scleroderma.org
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This is an in-person meeting. Please email msibley@scleroderma.org to register. 
We are excited to announce the launch of a new scleroderma support group serving the Greater Nashville, Tennessee area. This meeting is for brief introductions and discussion of goals for […] |
1 event,
Virtual Event
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Virtual Event
To register & for more information, please email msibley@scleroderma.org. |
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This support group meets at 6:00 p.m. CT on the 15th of each month. Please click here to register in advance: Meeting Registration - Zoom 
The Virtual Localized Scleroderma Support Group will meet at 7 p.m., Eastern, 3rd Tuesday of each month. Click here to register in advance. A meeting link will be shared after […] 
For more information, please email support@scleroderma.org |
1 event,
To register & for more information, please email westmetrosupport_ugl@scleroderma.org |
1 event,
For more information, please email dcharlton@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom |
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Join us for Stepping Out to Cure Scleroderma - Boston on Saturday, September 19. “The Boston Walk is deeply personal to me. I walk in loving memory of my mom, Marcia Delatizky, who was diagnosed with scleroderma in July 2000 and passed away in February 2024 after a brief illness. I miss her every single day. Participating […] 
The St. Louis Scleroderma Support Group serves the Heartland Chapter and meets virtually on the 3rd Saturday of odd-numbered months. For more information, please email support@scleroderma.org.
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Registration starts at 9:30 am. The walk starts at 10:30 am. Please help us grow the Philly Metro Walk. Your support is vital to our success! CLICK HERE TO REGISTER 
To register & for more information, please email djames@scleroderma.org 
To register & for more information, please email rmchapter@scleroderma.org
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Join us as we honor the memory of Melissa Marquis. See event page for additional information and to learn of her story. Date: September 19, 2026 Registration Time: 11:00 a.m. Walk Time: 1:00 p.m. Location: Walnut Hill Park, 184 West Main Street New Britain, CT 06052 Click here to register or donate to the event. |
1 event,
To register & for more information, please email sechapter@scleroderma.org |
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If you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration. 
Scleroderma diagnoses are less common amongst men. In fact, only 20% of the patient population is made up of males. We’ve designed a support group especially for males with scleroderma. Please click here to register in advance. A link to the meeting will be sent to you after registration. |
2 events,
Please click here to register in advance. To register & for more information, please email uglchapter@scleroderma.org 
The Caregivers Support Group meets on the 4th Thursday of the month at 7:00 p.m. ET. Click here to register. A link to the Zoom meeting will be sent after you register. |
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2 events,
To register & for more information, please email NEchapter@scleroderma.org 
Our September meeting will be held on Saturday, September 26. The in-person meeting will begin at 1:00 p.m. ET. Westport Public library 408 Old County Rd. Westport, Ma. 02790 This group also meets virtually at 1:30 pm ET. To register & for more information, please email NEchapter@scleroderma.org |
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To register & for more information, please email rmchapter@scleroderma.org |
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This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option. The library is inside of Walden's Municipal Building, and the community room is […] |
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To register & for more information, please email msibley@scleroderma.org. The time and location of this meeting is TBD.
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Join us for the inaugural Stepping Out to Cure Scleroderma Little Rock, Arkansas at Two Rivers Park. Register by September 12, 2026, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you are part of our mission! Please click here to register in advance. Date: October 3, 2026 Registration Time: […]
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Join us for a 3.7 mile walk around the lake or you can turn back as soon as you like. You can walk, run, ride a bike, roller blade, skateboard, you decide. This is a great family event. We have a kids area with fun activities planned. We had so much fun dressing up last […]
To register & for more information, please email rmchapter@scleroderma.org
To register & for more information, please email floridaprchapter@scleroderma.org 
This support group will meet every other month on the 1st Saturday at 6:00 pm CT. To register in advance, please email achadwick.scleroderma@gmail.com. |
