To register & for more information, please email rmchapter@scleroderma.org
42 events found.
Events
Calendar of Events
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This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option. The library is inside of Walden's Municipal Building, and the community room is on the second floor. You need to enter the main door of the Municipal Building instead of the library's entrance to access the elevator. Contact […] |
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Join us for a meaningful day of connection, education, and empowerment. Hear directly from Cleveland Clinic specialists as they break down bloodwork, pulmonary hypertension, lung involvement, and GI symptoms in ways that truly make sense. We’ll also take time to explore the emotional side of the journey through a unique, interactive session. Whether you’re newly […]
Free
To register & for more information, please email rmchapter@scleroderma.org 
To register & for more information, please email floridaprchapter@scleroderma.org |
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The Boardman/Youngstown Support Group holds hybrid meetings on the first Monday of the month. The meetings are on Zoom and at Davidson's Restaurant on Canfield Rd. in Canfield. To register & for more information, please email lglchapter@scleroderma.org. 
Just like each of our lives are different, so are our lived experiences with scleroderma. One thing we all seem to have in common is that at some point in this journey we have found the need to advocate for ourselves, whether it has been with family, friends, in our jobs or in a medical […] |
2 events,
The Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of the month at 3:00 p.m. ET. Please click here to register in advance. A meeting link will be shared after registration. For more information, please email PAH@scleroderma.org. 
The new Teen Support Group meets at 7:30 p.m. ET on the first Tuesday of the month. To participate, please complete this interest form. Elle Hurley, manager of support programs, will contact you with more information. Email teenSG@scleroderma.org for more information. |
5 events,
<!-- If you embed multiple forms on your page, only copy one of the lines. Otherwise, multiple copies of the form will appear. --> 
This support group is in-person. For more information, please email support@scleroderma.org 
To register & for more information, please email djames@scleroderma.org 
To register & for more information, please email floridaprchapter@scleroderma.org 
Please click here to register in advance. Please email tristatechapter@scleroderma.org for more information. |
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8 events,
To register & for more information, please email pcollins@scleroderma.org 
The Denver Mile High Support Group is hybrid and meets on the second Saturday of every month. Starting in January and through April, the meetings will only be held virtually. To register & for more information, please email rmchapter@scleroderma.org 
To register & for more information, please email cfidalgo@scleroderma.org 
For more information, please email floridaprchapter@scleroderma.org Use this link to register in advance: https://us02web.zoom.us/meeting/register/qWft8jCtQk6HUjt_qnfyrQ#/ 
For more information, please email floridaprchapter@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom This support group only meets during the odd months of the year. 
Segundo sábado del mes a las 11:00 a.m. ET 📩 Tras registrarse, recibirá un correo de confirmación con el enlace para unirse al evento. Envíe un correo electrónico a support@scleroderma.org para obtener más información. 
To register & for more information, please email sechapter@scleroderma.org 
We are excited to announce the launch of a new scleroderma support group serving the Greater Nashville, Tennessee area. This meeting is for brief introductions and discussion of goals for this group, format (Zoom, in person, hybrid), and frequency (ex: monthly) going forward in 2026. Meeting is open to people with scleroderma as well as […] |
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Join our parent support group and connect with other parents who understand the challenges of scleroderma. Click here to register in advance. A meeting link will be shared after registration. For more information, please email support@scleroderma.org. |
3 events,
To register & for more information, please email NEchapter@scleroderma.org
Virtual Event
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Virtual Event
Join Brooke to enjoy a chair yoga class with an emphasis on joint mobility and range of motion. When: Wednesday, May 13, 2026, 6:30pm ET This is a live class and we don't record it, so turn your video on and ask your questions. All the practices are GERD friendly and have options so you […] 
Individuals newly diagnosed as having scleroderma face an overwhelming number of questions about how it will affect their lives. Participation in a support group is one way to obtain information and receive support from others. This group will help navigate these questions and support newly diagnosed individuals. Click here to register in advance. A meeting […] |
2 events,
This group will meet virtually on the 2nd Thursday of each month. CLICK HERE TO REGISTER 
To register & for more information, please email uglchapter@scleroderma.org |
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8 events,
The St. Louis Scleroderma Support Group serves the Heartland Chapter and meets virtually on the 3rd Saturday of odd-numbered months. For more information, please email support@scleroderma.org.
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There will be three doctors presenting topics, an Ask a Doctor session and a Ask a Patient session. Registration is free and lunch is included. CLICK HERE TO REGISTER 
To register & for more information, please email support@scleroderma.org 
To register & for more information, please email djames@scleroderma.org 
To register & for more information, please email rmchapter@scleroderma.org
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Inaugural Year Excitement! Thank you to our Rhode Island Walk Committee for helping us to bring this Inaugural Year to fruition. We appreciate your time, support and direction given to […] 
To register & for more information, please email NEchapter@scleroderma.org This group also meets virtually at 1:30 pm ET.
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Date: Saturday, May 16, 2026 Time: 1:00 pm - 3:00 pm Please email msibley@scleroderma.org to register. TOPIC: Moving Forward Facilitators: Marilyn Sibley & Diane Reynolds For more information contact: msibley@scleroderma.org |
3 events,
The Coalition of Skin Diseases is hosting its annual Hill Day visit in Washington, D.C. in May. The National Scleroderma Foundation is a proud member of the Coalition of Skin Diseases and is an active participant in CSD Hill Day. For more information, please visit: skincoalition.org. 
To register & for more information, please email sechapter@scleroderma.org
Virtual Event
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Virtual Event
The facilitators of BIPOC (Black, Indigenous, and People of Color) Virtual Support Group invite you to join their upcoming Zoom support group meeting. Register in advance for this meeting: https://us02web.zoom.us/meeting/register/3q7RtYIIS5Oq6KbUSu6cIA After registering, you will receive a confirmation email containing information about joining the meeting. |
2 events,
Virtual Event
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Virtual Event
Please join us for The Lungs in Scleroderma (ILD) webinar! Francesco Boin, MD, professor medicine, director of the division of rheumatology and director of the Kao Multispecialty Scleroderma Program at Cedars-Sinai Medical Center, will lead the discussion. This webinar is sponsored by Boehringer Ingelheim. Please note there has been a schedule change for this event. […] |
4 events,
If you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will be on the third Tuesday of every month from 7:00-8:30 p.m. ET. Click here to register in advance for this meeting. After registering, you will receive a […] 
The Virtual Localized Scleroderma Support Group will meet at 7 p.m., Eastern, 3rd Tuesday of each month. Click here to register in advance. A meeting link will be shared after registration. If you're interested in learning more or joining, please email localizedSG@scleroderma.org. 
For more information, please email support@scleroderma.org |
1 event,
To register & for more information, please email westmetrosupport_ugl@scleroderma.org |
1 event,
For more information, please email dcharlton@scleroderma.org Use this link to register in advance: Meeting Registration - Zoom |
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To register & for more information, please email rmchapter@scleroderma.org |
2 events,
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<!-- If you embed multiple forms on your page, only copy one of the lines. Otherwise, multiple copies of the form will appear. -->
This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option. The library is inside of Walden's Municipal Building, and the community room is on the second floor. You need to enter the main door of the Municipal Building instead of the library's entrance to access the elevator. Contact […] |
2 events,
If you are interested in learning more, please email, LGBTQ@scleroderma.org, with questions. Click here to register in advance. A link to the meeting will be made available after registration. 
Scleroderma diagnoses are less common amongst men. In fact, only 20% of the patient population is made up of males. We’ve designed a support group especially for males with scleroderma. Please click here to register in advance. A link to the meeting will be sent to you after registration. |
2 events,
Please click here to register in advance. To register & for more information, please email uglchapter@scleroderma.org 
The Caregivers Support Group meets on the 4th Thursday of the month at 7:00 p.m. ET. Click here to register. A link to the Zoom meeting will be sent after you register. |
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Registration starts at 9:00 a.m. The walk starts at 10:30 a.m. Register by May 1, 2026, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission! CLICK HERE TO REGISTER 
To register & for more information, please email NEchapter@scleroderma.org
Virtual Event
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June is Scleroderma Awareness Month. We know that every person’s experience with scleroderma is unique. Each June, the National Scleroderma Foundation shines a light on individual journeys with scleroderma by sharing stories from members of our community, hosting special #TealTalk events, and Stepping Out to Cure Scleroderma events. Awareness Month will culminate on World Scleroderma Day, […]
The Boardman/Youngstown Support Group holds hybrid meetings on the first Monday of the month. The meetings are on Zoom and at Davidson's Restaurant on Canfield Rd. in Canfield. To register & for more information, please email lglchapter@scleroderma.org.
Just like each of our lives are different, so are our lived experiences with scleroderma. One thing we all seem to have in common is that at some point in this journey we have found the need to advocate for ourselves, whether it has been with family, friends, in our jobs or in a medical […] |
2 events,
The Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of the month at 3:00 p.m. ET. Please click here to register in advance. A meeting link will be shared after registration. For more information, please email PAH@scleroderma.org.
The new Teen Support Group meets at 7:30 p.m. ET on the first Tuesday of the month. To participate, please complete this interest form. Elle Hurley, manager of support programs, will contact you with more information. Email teenSG@scleroderma.org for more information. |
3 events,
This support group is in-person. For more information, please email support@scleroderma.org
To register & for more information, please email djames@scleroderma.org
To register & for more information, please email floridaprchapter@scleroderma.org |
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Registration starts at 8:00 a.m. Walk starts at 8:45 a.m. Register by May 28, 2026, to guarantee your t-shirt. Feel free to wear as much teal as you like! CLICK HERE TO REGISTER
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Join us for 2026 Stepping Out to Cure Scleroderma Boardman, OH When: June 6, 2026 Where: Boardman Park, 375 Boardman Poland Road, Boardman, OH Registration Time: 8:30 a.m. Walk Time: 10:00 a.m. Click here to register. "As beacons of hope we see how each act can create extraordinary change." - Leni Schulz, Mariann & Kevin Boyanowski
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Join us for Stepping Out to Cure Scleroderma Portland! When: June 6, 23026 Where: Columbia Park, 4503 N Lombard St, Portland, OR 97203 Registration: 9:00 a.m. Walk Begins: 10:00 a.m. Click here to register. Register by May 6, to guarantee your t-shirt. If you don’t want an event t-shirt, wear teal to show you’re part of our mission!
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Please join us for our second annual walk...meet new friends and have some fun while you join us in our fight against scleroderma...together we can help support people living with scleroderma, raise awareness and ultimately find a cure! When: June 6, 2026 Where: McClelland Pavilion-North, Strabane Municipal Park, 1929 Rt 519, Canonsburg, PA Registration Time: […]
To register & for more information, please email rmchapter@scleroderma.org
To register & for more information, please email floridaprchapter@scleroderma.org
Virtual Event
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Virtual Event
The National Scleroderma Foundation is excited to introduce the Scleroderma & Endometriosis Support Group as one of our newest support groups. This support group welcomes anyone who is impacted by scleroderma and endometriosis. Both of these conditions can feel isolating at times, and building community is important for everyone on this journey. We hope to […] |
