About Us

Welcome to the Florida & Puerto Rico chapter!

We are one of 13 chapters of the National Scleroderma Foundation working across the country to contribute to our national mission to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. We work throughout the state of Florida and Puerto Rico to offer local scleroderma educational opportunities for people affected by scleroderma and fundraisers to drive our mission. Join now as a member or volunteer and learn how you can be a part of our local scleroderma community.

Contact Information

Ferne Robin, Executive Director
National Scleroderma Foundation Florida & Puerto Rico Chapter
300 Rosewood Drive, Suite 105
Danvers, MA 01923
Phone: (978) 750-4952
Email: floridaprchapter@scleroderma.org

Chapter Advisory Committee

Chair ~ Desiree James
Vice Chair ~ Martin Lehmann
Noel Weinstock
John Karay
Jo Mervos
Meryl Parr

Honorary Member

Lonny Anger

Medical Advisory Board

Andre Caruso, PsyD

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