The Great Lakes - National Scleroderma Foundation

About Us

The Foundation can help you find scleroderma educational opportunities, fundraising events, and other activities that provide the resources you need and that drive our shared mission. Connect with us and find your best path.

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Support & Resources

Within these pages, find information about support groups that connect you with others affected by scleroderma and with scleroderma education programs to understand the disease and manage symptoms.

Groups and Discussions Education Programs

Get Involved

Community members are the voice and lifeline of fundraising and scleroderma awareness. In fact, volunteers are the foundation of our success.

Find a Walk Join a Virtual Walk Start a Fundraiser Advocacy and Awareness

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Subhead Paragraph one placeholder ABOUT SCLERODERMA Scleroderma is a rare autoimmune disease that affects connective tissue and the vascular...

Southeast Florida Stepping Out to Cure Scleroderma Walk

COCONUT CREEK, FLA. – On January 27, 2018, teams of enthusiastic individuals and families gather at Tradewinds Park, 3600...

featured news Read the latest news and information from the Foundation.

In Memoriam | Dr. Giuseppina Alessandra Farina

The scleroderma community is mourning the loss of Dr. Giuseppina Alessandra Farina, who passed away last week while in...

Virtual Brand Launch

On April 21, 2022, the Foundation held a virtual brand launch event. It was great opportunity to unveil a...

Ashley Barron Named Celebrity Ambassador by National Scleroderma Foundation

The National Scleroderma Foundation announced today that recording artist Ashley Barron has been named their official Celebrity Ambassador. A...

COVID-19 Vaccination, Prevention, and Treatment for Patients with Scleroderma

UPDATED April 11, 2022 By Jiha Lee, MD, MHS, and Dinesh Khanna, MD, MSc, Department of Internal Medicine, Division...