Nobody in our community needs to go it alone. One of the core parts of the National Scleroderma Foundation’s mission is to provide support and education to people living with scleroderma, and their families and loved ones.
The National Scleroderma Foundation Upper Great Lakes Chapter hosts the following chapter support groups:
- Autoimmune and Scleroderma (Virtual)
- Grand Rapids
- North Metro Support Group (MN) (Virtual)
- West Metro Support Group (MN) (Virtual)
- Wisconsin (Virtual)
Below, find links the Foundation’s national support groups and peer-mentor program.
The National Scleroderma Foundation has gathered a number of resources, from information sheets to video lectures, that can help patients better understand the symptoms related to scleroderma, as well as the research that is happening to search for treatments and a cure.
Chapters are the front line of contact between individuals affected by scleroderma and the National Scleroderma Foundation. They know the individuals in their community. The chapter embodies the strength of the scleroderma community. Each chapter plays an essential role in delivering the organization’s mission.
Events
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Pulmonary Arterial Hypertension Support Group
ZoomVirtual EventThe Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of the month at 3:00 p.m. ET. Please click here to register in advance. A meeting link will be […]
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Bereavement Support Group
ZoomVirtual EventIf you have lost a loved one to scleroderma, you may find support and solace in speaking with others who are grieving. Our monthly bereavement support group will be on […]
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Raynaud’s/Scleroderma Support Group
This support group is in-person. For more information, please email support@scleroderma.org
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Florida & Puerto Rico (Wednesday Meeting)
Virtual EventTo register & for more information, please email djames@scleroderma.org