National Scleroderma Foundation today announced a partnership with Komodo Health, a leading healthcare technology company. Through the new collaboration, the National Scleroderma Foundation will apply Komodo’s technology and patient-level insights to address some of the biggest challenges Scleroderma patients face as they navigate their healthcare journeys.
“This partnership, paired with insights from our patient champions, will enable the Foundation to generate accurate insights and deepen our understanding of the patient experience in scleroderma,” said Mary J. Wheatley, Chief Executive Officer of the National Scleroderma Foundation.
The National Scleroderma Foundation will leverage insights drawn from Komodo’s Prism application to better understand how to identify patients earlier, help patients find providers, and improve clinical trial recruitment. All of Komodo’s platform offerings, workflow applications, and technology services are built on its proprietary Healthcare Map, which includes more than 330 million de-identified patient journeys — from genomics and electronic healthcare records to insurance coverage and claims, race and ethnicity, and more.
Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system causing an overproduction of collagen (fibrosis) in the skin (localized scleroderma), and the internal organs (systemic sclerosis), which can be life-threatening. It is a condition that can affect anyone, with no known cause or cure.
“We are thrilled to collaborate with the National Scleroderma Foundation, applying Komodo’s technology to support and empower those affected by scleroderma,” said Web Sun, President and Co-Founder of Komodo Health. “Through this work, we hope to make significant strides in reducing the impact of this challenging disease and ultimately transforming outcomes for those affected.”
ABOUT NATIONAL SCLERODERMA FOUNDATION
A relentless force in finding a cure and improving the lives of people affected by scleroderma, the National Scleroderma Foundation advances medical research, promotes disease awareness, and provides support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation is the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever. Learn more at scleroderma.org.
Media Contacts:
Communications@scleroderma.org
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