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Education Programs

Scleroderma education programs

The Mid-Atlantic Chapter offers scleroderma education programs locally with leading experts in the field to help individuals understand their disease, cope with the challenges of their symptoms, and find their best path forward.  Our chapter also helps to identify local resources that are available to individuals affected by scleroderma through public and private entities.

Available to distribute to your doctors’ offices. Contact the chapter’s office for printed copies. 

Past Educational Programs: 

Cardiac Issues in Scleroderma Webinar Including Heart Failure and Pulmonary Hypertension, Etc. 

  • Paul Forfia, M.D., was the speaker at the Cardiac Issues in Scleroderma Webinar. Dr. Forfia is the Co-Director of the Pulmonary Hypertension, Right Heart Failure & CTEPH Program at Temple University Hospital in Philadelphia, PA.  

Kids Get Scleroderma Too! Virtual Conference for Parents and Guardians of Children Who Have Scleroderma 

  • The 2021 Kids Get Scleroderma, Too! conference (KGS2) was geared toward educating parents and guardians with up to date information to help them best navigate their child’s disease. To relieve the pressure of yet another virtual meeting for children, youth were not the primary participants. 

Central PA Virtual Support Group Guest Speaker Dr. Alan Baer

  • Dr. Alan Baer from Johns Hopkins University spoke about Sjogren’s Syndrome.