Advocate Resources

To help you understand the role of a volunteer scleroderma advocate and to breakdown the misconceptions of what advocacy is, review the folloiwng presentations prepared by scleroderma volunters.

Grassroots Advocacy Overview

Using Your Voice to Advance Research and Improve Care: Tips for Effective Advocacy and Congressional Outreach

Effective Public Speaking

Using Your Voice to Meet with an Elected Official

Download and read two helpful guides to the United States Congress and the legislative process. Remember, it’s not politics, it’s personal.

The United States Congress

The Legislative Process