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Education Programs

The Rocky Mountain chapter offers scleroderma education programs locally with leading experts in the field to help individuals understand their disease, cope with the challenges of their symptoms, and live their best life. Our chapter also works to identify local resources that are available to individuals affected by scleroderma through public and private entities.

Denver Scleroderma Education Day @ UC Health

When: April 8, 2023

Where: UC Health

Purchase Tickets Here

 

Aurora/Denver

Children’s Hospital Colorado
Section of Pediatric Rheumatology
13123 E 16th Ave, mailstop B-311
Aurora, CO 80045
Pediatric Rheumatology Clinics | Children’s Hospital Colorado (childrenscolorado.org)
Office Phone: (720) 777-6132
Fax: (720) 777-7341

Clinic Information:
Patients who have localized scleroderma/morphea, systemic sclerosis, stiff skin syndrome, or other sclerosing diseases are seen by referral. Our practice sees new patients up to age 18 years (and will follow established patients until age 22).
Appointments are held on the 2nd floor of the pediatric ambulatory clinic area, within the main hospital.
Hours: Monday – Friday 8 a.m. – 5 p.m.

Pulmonology:

Cardiology / Pulmonary Hypertension:

Physical Medicine & Rehabilitation:

Gastroenterology:

Nephrology:

Other:

  • We also have resources for supporting overall wellness, with clinics in Integrative Medicine, pain management and nutrition, among others.
Studies Status
Identifying Juvenile Scleroderma (Localized and Systemic) Immunophenotype Subsets Actively Recruiting
SCORE (Scleroderma Collaborative grant) A registry and biosample repository for pediatric patients with localized and systemic sclerosis Actively Recruiting
GIT (GI tract involvement in scleroderma) A study looking at the extent of GI involvement in juvenile systemic sclerosis and its assessment. Actively Recruiting
Inception An international multi-site registry of patients with juvenile scleroderma to compare clinical features and outcomes Actively Recruiting
Juvenile Localized Scleroderma Consensus Treatment Plan pilot study Closed to enrollment

University of Colorado Scleroderma Program

University of Colorado Anschutz Medical Campus
Division of Rheumatology
Barbara Davis Center
1775 Aurora Court, P.O. Box 6511, Mail Stop B-115
Aurora, CO 80045

Physicians Afilliated with this Center:

Clinic Information: Hours: M–F 8 a.m. to 5 p.m.
Contacts: University of Colorado: (720) 848-7700 or (720) 848-4400

For anyone who may be interested in participating in any clinical studies, please contact Mallary Crow-Adams, (303) 724-8403 or mallary.crowadams@ucdenver.edu.

A Multicenter, Randomized, Double-Blind, Placebo-Controlled Phase 3 Trial to Evaluate Efficacy and Safety of Lenabasum in Diffuse Cutaneous Systemic Sclerosis Open
Scleroderma Lung Study III (SLS III): Combining the anti-fibrotic effects of Pirfenidone (PFD) with Mycophenolate (MMF) for treating scleroderma related interstitial lung disease Open
Rituximab in SSc-APAH: A Randomized, Double-blind, Placebo-Controlled, Phase II Multicenter Trial of a Monoclonal Antibody to CD20 (Rituximab) in the Treatment of Systemic Sclerosis-Associated Pulmonary Arterial Hypertension Open

National Jewish Health
Scleroderma Program
Main Campus
1400 Jackson St. Denver, CO 80206
njhealth.org/scleroderma

The Scleroderma Program at National Jewish Health offers patients comprehensive care and support. Our multidisciplinary scleroderma team includes specialists in rheumatology, interstitial lung disease, pulmonary hypertension, cardiology, gastroenterology and nephrology. We also offer the latest scleroderma clinical trials.

Appointments (patient self-referrals): (800) 621-0505

Physician Referrals: (800) 652-9555

Clinical Trials: njhealth.org/clinicaltrials

Physicians Affiliated with the Scleroderma Program:

Rheumatology: Liudmila Kastsianok and Mehrnaz Maleki Fischbach

ILD: Rebecca Keith, Michael Mohning and Zulma Yunt.

GI: Arash Babaei and Miranda Ku

Pulmonary Hypertension: Marjorie Patricia George, Darlene Kim and Mohammad Dalabih

National Jewish Health Resources