How to help
Within these pages find information about joining our dedicated volunteers, raising needed funds, building disease awareness, and improving public policy.
Community members are the voice and lifeline of fundraising and scleroderma awareness for each chapter. In fact, volunteers are the foundation of our chapters’ successes. Getting involved is an important step in your scleroderma journey. Taking action against the disease comes in many forms beyond medical care. Doing something like volunteering, raising money, or speaking out about public policies can empower you and help you thrive.
Pediatric Treatments The overall goal of treatment and management is to minimize the impact of the disease on your child’s current and future life, weighing the risks and benefits of medication.
Newly Diagnosed A diagnosis of scleroderma doesn't have to be overwhelming, if you have information.