The Heartland Chapter offers scleroderma education programs locally with leading experts in the field to help individuals understand their disease, cope with the challenges of their symptoms, and find their best path forward. Our chapter also helps to identify local resources that are available to individuals affected by scleroderma through public and private entities.
10th Annual Sclero-What? Education Day
When: October 15, 2022
Time: 9:00 a.m. – 12:30 p.m. Central
There was a keynote address by Dr. Monique Hinchcliff Associate Professor, Director of Yale Scleroderma Program. The event also had Gentle Yoga and Yogic Breathing for Symptom Management in Scleroderma by Dr. Sundar Balasubramanian PhD.
There was over $800 in giveaways between speakers!
We will host our 10th Annual Sclero-What? Education Day on October 15, 2022 from 9:00 a.m. – 12:30 p.m. Central.
Our Sclero-What? Education Day is our primary education event. We hosted the Ninth Annual Sclero-What? Scleroderma Regional Education Day on October 9, 2021. This education day was free and open to the public. View a recording of the sessions here on the Heartland Chapter’s Facebook page.
Other Educational Resources:
- Scleroderma Foundation YouTube Channel – a collection of educational videos posted by the National Scleroderma Foundation. This includes recordings of event sessions from past National Patient Education Conferences.
- 2022 Heartland Education Day Playlist – session recordings from the 10th annual local patient Education Day.
- 2020 Heartland Education Day Playlist – session recordings from the 8th annual local patient Education Day.
- 2018 Heartland Education Day Playlist – session power point slides from the 6th annual local patient Education Day.
- ClinicalTrials.gov – a searchable database of clinical trials managed by the U.S. National Institutes of Health. Clinical trials are how new medical treatments are tested for efficacy and, hopefully, approved for use. Scleroderma trials are essential to better manage, and eventually cure, the disease. *Download a PDF list of clinical trials in Scleroderma.
Disclaimer: The National Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials or studies referenced here. Information is provided to keep the readers informed. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician for proper evaluation and treatment.