With Scleroderma Awareness Month just a week away, the National Scleroderma Foundation is incredibly excited to share some news with you—we’re helping release a book! Scleroderma: My Overeager Gardeners & Their Vines is a children’s book that uses the metaphor of a giant garden to explain what happens when someone has scleroderma.
We know that even for adults, discussing rare diseases like scleroderma can be an immense challenge. Scleroderma presents itself in so many ways and the terminology is overwhelming. Whether a child is facing a diagnosis of their own or understanding what a loved one living with scleroderma is going through, it can be a confusing and challenging experience for little ones.
“We believe this can be an incredibly valuable resource to help families have conversations about scleroderma,” Elizabeth Mulroy, Senior Director for Mission Delivery said. “We hope this helps explain some of the complex medical terms in ways that kids can better understand.”
Learn more about the book by visiting the Foundation’s new page with information about the book and a link to the online, digital copy of the book. The Foundation is also very proud to offer printed copies of the book at just the cost of shipping. You can the book order form on the National Scleroderma Foundation’s online merchandise store.
