2023 Scleroderma Awareness Month

June is Scleroderma Awareness Month. Join us this year for “Let’s Talk About Scleroderma.” Let’s Talk About Scleroderma urges our local communities to engage in conversations about scleroderma with those familiar and unfamiliar about this rare disease. Anyone can have scleroderma. The cause is still unknown and there is no cure. We can help you find your best path forward. Throughout June we will be featuring videos, social posts, live chats, roundtables, light ups, proclamations, Stepping Out to Cure Scleroderma walks, and so much more!

Awareness Month will culminate on World Scleroderma Day,  June 29. World Scleroderma Day highlights the need to increase awareness of scleroderma and to advocate for those affected by this life-threatening disease.  June 29 was selected in 2009 by FESCA (Federation of European Scleroderma Associations) as World Scleroderma Day to commemorate Paul Klee, a gifted abstract artist who died of systemic sclerosis on June 29, 1940.

Proclamations:

• A proclamation is an official designation of an event. Proclamations are a great way to educate the public about a specific issue and bring attention to a cause.
• It is an effective tool for gaining public recognition of your event because it carries the full support of a key government official in your state or community.

Light Ups:

• During scleroderma awareness month in June, we will be lighting up across the USA.
• Why? To raise awareness
• Theme: Let’s talk about scleroderma
• Hashtag: #tealtalk

To share photos from proclamations and light-ups you have secured, please complete this form: scleroderma.org/awareness_light_up_photo_submit