Trusted Board Member Elected to Lead National Scleroderma Foundation

Kevin Boyanowski Elected as Chair of the National Scleroderma Foundation

DANVERS – The National Scleroderma Foundation has elected Kevin Boyanowski to serve as Chair of the Board of Directors for a two-year term. Mr. Boyanowski has served on the Board since 2018. In addition to his board service, he served as Chair of the Foundation’s Strategic Planning Committee and as a member of the Finance Committee. Prior to joining the Board, he volunteered with the Foundation’s Ohio chapter, where he and his wife Mariann are still involved today. 

Mr. Boyanowski is an alumnus of Wake Forest University. His professional background includes over 30 years in professional services and the retail industry with such companies as IBM, KPMG, and Family Dollar/Dollar Tree.  His career focus has been on global trade, corporate strategy, analytics, and operational improvement. Kevin and Mariann have two children, and live in Charlotte, North Carolina. 

Of his new role, Mr. Boyanowski says, “I am honored and humbled to be selected to serve as the Chair of the National Scleroderma Foundation. At this time in our journey, we have so many exciting and deeply transformational activities underway. Our vision for the future should be very comforting for everyone impacted by scleroderma. Our work to provide scleroderma support, education, and research has and will continue to be the cornerstones of the Foundation’s mission.”  

As Chair of the Board, Mr. Boyanowski will lead the Foundation’s efforts to achieve its mission, which is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families, and support networks.

“Kevin has been instrumental in leading the Foundation’s strategic planning efforts and leading us through transformational change,” shared Foundation CEO Mary Wheatley, IOM, CAE. “I am delighted to see his work recognized by his peers and colleagues as he is elected to this new leadership role, and I’m excited to work with him to lead the Foundation into its next chapter!” 

To learn more about the Foundation Board of Directors, visit


Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system causing an overproduction of collagen (fibrosis) in the skin (localized scleroderma), and the internal organs (systemic sclerosis), which can be life-threatening.  Anyone can have scleroderma. The cause is not yet known and there is no cure.  


The National Scleroderma Foundation is a relentless force for people who have scleroderma as it advances medical research, promotes disease awareness, and provides support and education to people with scleroderma, their families and support networks. Its highly regarded peer-reviewed research grant program aims to discover the cause, understand the mechanisms, and overcome scleroderma forever.

Release Date: July 1, 2022