Where to Start
More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
National Scleroderma Foundation CEO, Mary J. Wheatley, IOM, CAE, joined the global scleroderma community at the 9th Systemic Sclerosis…
More than 1,000 clinicians and researchers joined together for the 9th Systemic Sclerosis World Congress. Organized by the World Scleroderma Foundation, the event runs…
The National Scleroderma Foundation and our network for patient advocates are preparing for our next Virtual Hill Days meetings….
Events
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Supporting Your Loved Ones – Webinar
FeaturedVirtual EventThe National Scleroderma Foundation invites caregivers and loved ones of people living with scleroderma to a special, peer-led panel discussion focused on navigating the unique challenges of caregiving. Caring for […]
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Boardman/Youngstown Support Group
Hybrid EventThe Boardman/Youngstown Support Group holds hybrid meetings on the first Monday of the month. The meetings are on Zoom and at Davidson's Restaurant on Canfield Rd. in Canfield. To register […]
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Pulmonary Arterial Hypertension Support Group
Zoom Meeting link available after registrationVirtual EventThe Pulmonary Arterial Hypertension Support Group meets on the first Tuesday of the month at 3:00 p.m. ET. Please click here to register in advance. A meeting link will be […]
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Teen Scleroderma Support Group
Zoom Meeting link available after registrationVirtual EventThe new Teen Support Group meets at 7:30 p.m. ET on the first Tuesday of the month. To participate, please complete this interest form. Elle Hurley, manager of support programs, […]
