We work in New York, Northern New Jersey, and Connecticut to provide support and education to people affected by scleroderma, while we fundraise to advance our mission. The Tri-State Chapter community hosts a number of chapter-specific support groups.
You can also get involved fundraising and spreading awareness in your community by joining a Stepping Out to Cure Scleroderma event.
Click the links below for information on how you can get involved with our chapter:
Events
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Orange County Support Group (Hybrid)
This support group meets at the Josephine-Louise Public Library in Walden, NY and offers a virtual option. The library is inside of Walden's Municipal Building, and the community room is on the second floor. You need to enter the main door of the Municipal Building instead of the library's entrance to access the elevator. Contact […]
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Rochester Patient Education Forum
University of Rochester Medical Center, School of Dentistry 601 Elmwood Ave., Building 1-9576, Ryan Case Method Room, Rochester, NY, United StatesTo register & for more information, please email msibley@scleroderma.org. The time and location of this meeting is TBD.
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Healthcare Self-Advocacy: Owning your health journey from patient to partnership workshop
FeaturedZoomVirtual EventJoin us for an online webinar titled: Healthcare Self-Advocacy: Owning your health journey from patient to partnership workshop. Camille (Cami) Novachek will deliver an encore presentation of her 2026 National […]
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Buffalo Support Group
Eggertsville Library 4622 Main Street, Snyder, United StatesThe Buffalo Scleroderma Support Group will be meeting in person on 10/10/26 from 11am-1pm ET at the Eggertsville Library, 4622 Main Street, Snyder, NY 14226. To register, please email support@scleroderma.org.
For more than 20 years, Lisa dedicated her career to helping children learn and grow. A Tampa-area teacher, wife,...
The National Scleroderma Foundation is very excited to introduce Alison Fronning to the team. Alison joined the Foundation in...
The National Scleroderma Foundation is proud to announce the recipients of the 2026 Pre-Doctoral Fellowship awards. The Pre-Doctoral Summer Fellowship...