Support and Resources Helping you find your best path by connecting with others and your community.
Support Groups

Nobody in our community needs to go it alone. One of the core parts of the National Scleroderma Foundation’s mission is to provide support and education to people living with scleroderma, and their families and loved ones.

The National Scleroderma Foundation Tri-State Chapter hosts the following chapter support groups:

  • Connecticut Support Group (Hybrid)
  • Metro NY Area, Long Island, Bergen County & Northern New Jersey (Virtual)
  • Orange County (NY) (Virtual)
  • Rochester (In-Person)

Below, find links the Foundation’s national support groups and peer-mentor program.
Tri-State Chapter Upcoming Events Foundation Support Groups Peer Mentor Program
Resources

The National Scleroderma Foundation has gathered a number of resources, from information sheets to video lectures, that can help patients better understand the symptoms related to scleroderma, as well as the research that is happening to search for treatments and a cure.
Scleroderma Resource Center Scleroderma Toolkit Foundation YouTube Channel

Chapters are the front line of contact between individuals affected by scleroderma and the National Scleroderma Foundation. They know the individuals in their community. The chapter embodies the strength of the scleroderma community. Each chapter plays an essential role in delivering the organization’s mission.

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Events

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Today

  • Wisconsin Free In-Person Health Conference

    UW-Green Bay Union Center 2430 Campus Court, Green Bay, WI, United States

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  • Minnesota Frost – Scleroderma Awareness Event

    We are excited to host a Scleroderma Awareness Event at the April 19, 2026, Minnesota Frost Women’s Hockey Game. They are the reigning Walter Cup Champions! We will have our own private box (normally $70) and have a table on the concourse to give information on scleroderma to all the Frost fan base attending the […]

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This is the default icon This is the default icon_II Diagnosis and Tests Understand the process of diagnosis and the tests often used.
This is the default icon This is the default icon_II Find Your Path No two scleroderma journeys are the same. Find your best path to living with scleroderma.