The National Scleroderma Foundation and our network for patient advocates are preparing for our next Virtual Hill Days meetings. Scleroderma advocates...
Q: Do you have any advice regarding how people can/should go about getting a proclamation from their local areas for Scleroderma...
The National Scleroderma Foundation is delighted to be participating in the Rare Disease Week and Rare Disease Day activities organized by...
The EACH/PIC Coalition has released an updated, patient-led analysis that sheds light on how people across the U.S. actually experience prescription...
We’re proud to share that we have joined the Champions for Change – Paid Time Off (PTO) Initiative, a national effort...
The National Scleroderma Foundation is very excited to share that one of the key pieces of legislation we have been supporting this year...
The National Scleroderma Foundation is gearing up for a busy year for our community’s legislative advocates. There are several federal health...
A look back at a year of growth with Vice President of Community Engagement Ashley Pruett The National Scleroderma Foundation spent...
The Foundation is a proud member of The Ensuring Access through Collaborative Health (EACH) and Patient Inclusion Council (PIC), otherwise known...
